Her platelets are high? Her GP is very slack! -get a referral to a haematologist,! I had high platelet (700,000) count and slowly increasing ,high red blood cell count, (and white ones. ) diagnosed with Polycythaemia rubra vera- a slowly progressing blood cancer -symptoms were similar-tight around the diaphragm under the ribs and breathing disturbed- confused it with my asthma.
ET has high platelets mainly.
PV has high red blood cell volume mainly
CML is also a blood Cancer.
These 3are called MPN's or Myeloproliferative neoplasms -
If diagnosed and treated you should have a near normal life span .
It's not like an acute leukemia-MPN's are chronic slowly progressive blood cancers.
Firstly the GP should test you for "temporary or secondary polycythaemia ( without the words Rubra vera)"-mine did -actually my GP was away and four different doctors who happened to be on duty in the clinic were excellent in following it up.
They check for-
Other cancers and a few other things-blood tests to see if the platelets are increasing -an undiagnised infection and tell you to immediately stop smoking .
A lot of smokers get the secondary form of polycythaemia.
When this has all been done they send you to the haemo who will probably advise a Bone Marrow Biopsy ( not a transplant ha ha ) . This doesn't hurt in Australia , well I didn't feel a thing-they give you a twighlight sedation.
When they get this result there are often some grey areas between diagnosing it as ET or PV. It doesn't matter as The treatment is the same . I take 9 Hydrea tablets per week and within 3 weeks all my counts were back to normal .ive been lucky -PV can cause blood clots and as a result strokes and heart attacks. I've prevented yeses by being dx. I have no side effects from the illness or tge Hydrea.
Some people get dx after a stroke or blood clot in their leg or whatever.
MPN's are rare but not classified as " extremely rare " about 2or3in 100,00.
A lot of research is being done now .
Here is my email address in case you want to let me know how you go
If she is a smoker it could be as simple as not smoking and not an MPN.