Hi my mum has sever emphysema, she lives alone at home and is really struggling.She cant walk more than a few steps without getting breathless.
I took her to a private consultant in July as we were unable to get a nhs consultant apointment.
He diagnosed severe emphysema and said there wasnt anything more that could be done, other than possibly long term low dose steroids.
She has seen respiratory team who say she cant have oxygen as she is a retainer.
She has had four stays in hospital this year, the last time i refused to take her home unless a care package was installed.She has repeated infections, is extremely depressed and wont eat, and has lost weight.
I keep asking doctor for help, they sent locum round who prescribed diazepan for anxiety attacks.
I am also trying to work full time as well as going to care for her when i can as i live an hour from her.
Can anyone offer any advise as to how i can improve her quality of life and get her some hope as she has lost all hope and has just about given up.
I did ask doctor about low dose steroids which they have refused as they say she will get repeated infections as it will lower her immunity.
Mum says that she thinks the doctors dont care as she is 77 and just want her to die.All they do is keep giving emergency packs of steroids and antibiotics.Because of the repeated antibiotics the oxygen team wont assess her as they say she has to be off them for minimum of 6 weeks for true assesment.Some consultants in hospital say she should have oxygen and others say she shouldnt.They also will not let her have a nebuliser.Please can someone give me some advise im at my wits end with conflicting advise and just hate seeing her so distressed.She has severe depression due to being scared, and also panic attacks.