Since seeing the Consultant a few weeks back I am now on oxygen 16 hours a day (2ltrpm sitting and 4ltrpm moving around), I have received two appointments for further tests.
The first test is at the Cardiac Investigations Unit for a echo-cardiogram, (painless procedure and takes 30 minutes), (August 27th)
the second test is in the Respiratory Department for a SPECIALIST LUNG FUNCTION TEST, a list of do NOT does is attached and a list of when to stop taking my inhalers. No information about the actual test and what it will entail. (September 16th)
It's not really the tests that are making me nervous, it's the results and what they are going to reveal. As some of you know I went through 6 weeks of Radiotherapy & Chemotherapy last year for cancer and my real breathing problems started then, or very soon after. I blame the cancer treatment, they say it can not be so ? but having explained it all to the Consultant I am at least getting somewhere and slowly making headway, progress is slow but as I said now I'm nervous and getting scared that these test results will confirm what I suspect and the cancer treatment has caused irreversible damage and is now going to be untreatable and turn in to a death sentence. The Consultant has already told me that if I do need new lungs I can NOT go on the transplant list until 2 years after the all clear from the cancer. ( Just GREAT isn't it, beat cancer then get punished for it by being refused other treatment !!).
Anyway, just wanted to let you all know.