Another hurdle!: I was admitted to... - British Heart Fou...

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Another hurdle!

LindaLittleBear profile image
โ€ข11 Replies

I was admitted to hospital on Thursday via AE blood test indicated heart failure. Also have fluid build of approx 30kg over body and limbs..

I spent approx 16 hrs in AE, 10 hrs on the ward corridor with a privacy screen and then moved to a cupboard/ office. Last night I was eventually moved to a room ๐Ÿฅณ

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Difficult times for the NHS and patients!

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Anyway it seems I have right side heart failure, likely induced by the radiotherapy I received for breast cancer treatment. Investigations on going.

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ATM I'm feeling rather sorry for myself ๐Ÿ˜”

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Not sure how much more my poor body and mind can take!

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Thank you for listening!

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LindaLittleBear profile image
LindaLittleBear
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11 Replies
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happyrosie1 profile image
happyrosie1

oh Linda, weโ€™ve been following your story for some time now. Iโ€™m so sorry you are in this position. Sending positive thoughts and prayers to you.

LindaLittleBear profile image
LindaLittleBearโ€ข in reply tohappyrosie1

Thank you! Much appreciated! xx

Maxbar profile image
Maxbar

Sorry to hear this Linda hope you can get back on track soon. Sending all my best wishes x

LindaLittleBear profile image
LindaLittleBearโ€ข in reply toMaxbar

Thank you! x

Yumz199725 profile image
Yumz199725

Ahhh Linda you poor thing so sorry to hear what your going through ๐Ÿ’” ๐Ÿ˜” xx

LindaLittleBear profile image
LindaLittleBear

Thank you, I've been following your trials and tribulations. How are things with you? ๐Ÿค— ๐Ÿ˜˜

Bluehope81 profile image
Bluehope81

Hi Linda you are so brave, and my thoughts are with you, hoping for good news in the future.

LindaLittleBear profile image
LindaLittleBearโ€ข in reply toBluehope81

Thank you!

Butterfly65 profile image
Butterfly65

Hello Linda,

I think most of us would be feeling very sorry for ourselves if we'd been through what you have, ( just briefly read through your posts.)

Pleased you're in an actual hospital room now & hope you're receiving the best of care.

If you have fluid retention you'll likely be given diuretics via drip feed. I lost just over 1 & half stone in weight over 11 days whilst in hospital with HF last September.

They'll also likely want to give you an echocardiogram to give a more detailed picture of what's going on plus how well your hearts pumping blood around your body, also known as Ejection Fraction.

Mine was just 23% but had risen to 34% within two months after taking a cocktail of drugs.

Normal Ejection Fractions are around 55 to 65 %, not 100%, so try not to worry when you finally receive results like I did.

Nurses advised me not to leave hospital until I'd had an echocardiogram because there's a longer waiting list for outpatients, I had mine two days before I was discharged. Good luck, try not worry & rest as much as can. ๐Ÿ’

LindaLittleBear profile image
LindaLittleBearโ€ข in reply toButterfly65

Butterfly 65, thank you for sharing your experience.!All that you have said is happening. I've lost 10kg over the last 5 days.

They did and echo but want to do another one and say they don't yet know if it is the muscle or valve which is damaged.

I'm scared of being sent home with diuretics and being lost in the system ๐Ÿ˜•

In the meantime I have a nice big room and a bed hugger to keep me warm ๐Ÿค—

How are you doing now? ๐Ÿ’

Butterfly65 profile image
Butterfly65โ€ข in reply toLindaLittleBear

Don't be scared of being lost in the system. Make sure these things happen; If you have HF you should be given medication as well as diuretics, & before you're discharged a Heart Failure nurse should visit you with details of what happens next & you'll be given booklets about an online site called pumping marvellous. You can look that up now for helpful tips.

Since I was discharged I've had several appointments with HF nurses on either cardio investigations outpatients or ambulatory care,

where I'm regularly weighed, have bloods taken, have an ECG ( I have Afib too) & my blood pressure checked. I have low blood pressure & heart meds make it even lower.

Upon leaving hospital I was given a direct telephone number to HF nurses that I could ring if I had any concerns & I've seen cardiologist twice.

I'm currently waiting for a cardioversion to try to put my racing, irregular heartbeat back in normal sinus rhythm, & also for a CT Scan & maybe then an ablation plus a angiogram to rule out Coronary artery disease.

I had a cardio MRI back in October but was told the images were extremely blurred because of my racing irregular heartbeat. I'm currently taking seven different medications but some of those are for my Afib.

- Michelle

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