Me again 😀

[Knavesmire27]

Hi all, am not sure where I am going with this post but here goes ☺️. It's been a tough few years and I am still on the road to recovery but am trying. I guess I want what we all want, To just be “normal”. And then I read some of the posts here and I see the struggles that we are all facing and we are just one community. There are plenty of others out there fighting their own different struggles. So I guess I just want to say” hats off” to us all for all we are going through. Our individual challenges are unique to each of us. The fear that they bring are real, but I would like to think by ‘putting those fears out there” and then the overwhelming support given does help. It certainly helps me. Good luck and a virtual hug to us all ☺️.

[honeybubs]

well said xxx

[happyrosie1]

thank you.

Life is fullof challenges. The older we get, the more challenges we have - and the better we are, through the wisdom of age, with dealing with it.

[Murderfan58]

Together we are stronger. Because we can say things here admit our fears and worries things we can't say to loved ones . Well I could say anything to my husband but that died with him . We don't just have health problems but everyday ones . There is no such thing as normal and anyway I think all here are unique and that is worth celebrating so as you say Knavesmire hats off to us.

We are survivors and will not give in without a dam good fight . Quality of life is more important than quantity as without quality what's the point of living a long life if you can't do what you want without being totally dependant on others . My mom was totally dependant last 6 months of her life . She lived with me for 18 months . She had cancer and dementia but dementia killed my mom 4 months before her body died . I never want my daughter to go through what I did . I don't want her to have my memories or see your mom turn into a vicious hateful woman who's only goal is to inflect pain on you . But it wasn't my mom it's the fear dementia causes she didn't know who she was ,where or who I was . Her lucid times she thought I was her mom .

Knavesmire you keep fighting to have the life you want and everyone here . And keep talking . I know how much everyone helps me especially after my weeks stay in hospital and recovering this week having a pj week which I have never done before but have enjoyed it .

Keep.fighting hearties ❤️

[Sambobs17]

hello there, just really wanted to say a big thank you for your post it makes people feel they are not on there own.

We are all on this merry-go-round of symptoms, I personally feel a bit lost at times! wish literally with all my ‘heart’ there was a one fit for all solution but we all seem to have different things going on we wouldn’t be human otherwise, but one thing we do have in common is a need to feel connected, just the fact I can go on here and check and yes double check things! I find is a godsend - I try to be as normal as possible in front of family which in itself at times is difficult so it stops me complaining to them and I can catch up on here.

In the meantime I hope everyone on here gets better soon, and a big thank you as this forum has helped me so much take care everyone 😊

[SuperFluff]

Hi Knavesmire27. İt helps me reading about someone like you - who had a similar diagnosis to me. İ have mitral valve regurgitation as a result of rheumatic fever (and other valves leaking as a result but I am not at the surgery stage). You realise that you are not alone. You understand that everyone wants to be 'normal' again. By sharing your struggles, you help mentally prepare people like me for what could lie ahead. Thank you 💕

[Whiteghost]

Spot on👌

[Velda1]

Yeah, we got chucked a brick and we are trying to build on it. We all have challenges, some more than others. Thats why we should all talk. Im also a cancer survivor and the help you get with that is amazing unfortunately as HA survivors there is nothing out there on NHS for us, no maggie type centres no counsellors anything SO THIS type of page and also if you haven't seen it on Facebook........facebook.com/groups/healthy... are fantastic...its run by a Cardiac Rehab nurse, she is also on TikTok and its a great community very similar to this. Keep going guys, together we are strong. Stay strong and well

[Holidayescape]

Thank you.

[Rosie1066]

The last seven years have been an utter nightmare for my family health wise but I won’t bore you all with the details.. I had hoped 2025 would be a turning point but , so far, unfortunately that is not to be. So the fight goes on.

[Knavesmire27 in reply to Rosie1066]

Keep fighting Rosie1066 🤞

[Rosie1066 in reply to Knavesmire27]

Thank you! I certainly will never give up.

[MumaLines]

What a lovely post.

I think a lot of us are “petrified” but can’t seem to type it on a comment. All you Hearties give wisdom and clarity to others, especially when it comes to symptoms and medications.

Thank you Hearties 🎉🎉🎉