Ticagrelor withdrawal : The anniversary... - British Heart Fou...

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Ticagrelor withdrawal

K9ndo profile image
9 Replies

The anniversary of my hospital discharge from my Nstemi and stent happened six days ago so I stopped taking my Ticagrelor. Not sure what to expect but it all has been positive, occasional breathlessness seems to have gone away. Things do feel different in my chest but it’s hard to explain, occasional palpitations also gone. Done a park run this morning breathing seems to be easier heart rate average 125bpm.

Also on my anniversary date my GP surgery contacted me to get my bloods checked, which surprised me as I seemed to have to do much of the chasing.

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K9ndo profile image
K9ndo
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9 Replies
Kkarlak profile image
Kkarlak

Thankyou for the post. I am due to stop mine at the end of December so not sure what to expect as well. At the moment the bruising I am getting from a small bump, or maybe even no bump is very common and sometimes severe. Although the cardiac nurse said "good, it means the thinners are working" :) . Hopefully this will reduce after I stop this med.

Must admit I am a little apprehensive to change or remove any medication, as am stable after the HA, but do understand why the Ticagrelor needs to be stopped.

Quesswho profile image
Quesswho

Hi I was really concerned about stopping Ticagrelor after 4 years. Just a few weeks to go now. But a very special person called Roy 😇 explained the reason why you take them after stents. I can't wait to stop them. Apparently no side effects. Happy Days.❤

GFFF profile image
GFFF

I stopped mine with no side effects, thankfully less bruising since I stopped which was a bonus x

Rickstarr profile image
Rickstarr

Hi there how you doing, sounds like your about 9 months in front of me, I had HA at Easter 3 stents and the usual meds, back driving HGV feel absolutely fine, fitter no side effects, just want to ask did you just stop the twice daily ticagrelor after a year or was it the doctor who took you off and are there any other meds to stop? I've just turned 63, like to hear your thoughts please if possible, thanks

K9ndo profile image
K9ndo in reply toRickstarr

Hi Rickstarr, I took Ticagrelor twice daily and my hospital discharge notes stated to be stopped after 12 months. The only medication I’m taking going forward is a Statin, Rampril , Lanszoprasol and Asprin.

Hope that helps

Rickstarr profile image
Rickstarr in reply toK9ndo

Hi ye that's great thanks, also my doctor said you may able to come off Lanzoprasol as well in time but will see ,thanks for the reply stay healthy

Pinksock2 profile image
Pinksock2

I am 6 months in. When I did my re-hab I asked about stopping Tricagrelor after a year, and what to do, and I was told that would need to confirm it with my doctor, not just go ahead, as in some cases it continues for a bit, so when I get to my year anniversary I will contact my gp for confirmation. It is reassuring to hear there aren’t really any bad side effects of giving up, and I too get occasional breathlessness - I used to get asthma but this is very different, (all checked with doc) and I assume it is heart/meds related, it would be very nice for that to go, so thank you for the info.

Jedi14 profile image
Jedi14

After my stents, I was on Aspirin and Ticagrelor in April 2023, for 12 months. But after readmission in December, that all changed, no longer on the above, instead on Clopidogrel and Apixaban. The Clopidorel stopped this June.

I think it all depends on how your heart/body has reacted in time to the meds.

Atky profile image
Atky

Hi I had severe heart attack 7 years ago and after 1 year Ticagrelor was withdrawn. No side effects or problems since.

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