Ticagrelor : Morning Can anyone tell... - British Heart Fou...

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Ticagrelor

Frenchbulldogsx profile image
12 Replies

Morning

Can anyone tell me there experience with Ticagrelor, as has been recently prescribed (post MI). I have bruising and I bleed profusely just scratching a pimple. But I knew that would be the case.

But I would like to know if anyone has had any side effects or believes that there is a better alternative.

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Frenchbulldogsx profile image
Frenchbulldogsx
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12 Replies
sasquot1 profile image
sasquot1

I too have been bruising easily half the time I don’t even remember knocking myself. My GP says that sadly it can happen when on this medication but she has told me to keep an eye on the shape and size of bruise as if it worsens then I should get it checked . x hope that helps

Frenchbulldogsx profile image
Frenchbulldogsx in reply tosasquot1

I knew that I would bruise but as you say I never know when I bumped into something, sometimes the dog only has to jump up and I get a bruise 🤔

SpiritoftheFloyd profile image
SpiritoftheFloyd

Hi Frenchbulldogsx

I've been on this since my heart attack last December, due to come off in 4 weeks after 1 year.

No real side effects beyond very bad bruising especially when first started taking it, seems to have got better with time, but still notice a heavy bruise almost weekly and can't for the life of me recall bumping into anything that would have caused me to bruise.

I believe some people are prescribed clopidogrel which from what I can establish is an earlier anticoagulants drug, Ticagrelor being first registered for use in about 2010.

Calliope153 profile image
Calliope153 in reply toSpiritoftheFloyd

Ticagrelor is the "gold standard" (according to the cardiologist) treatment. Cloppy dog was the earlier standard treatment. I took Tricagrelor for three months but had side effects - the worst was breathlessness and after being ambulanced in to hospital the same cardiologist changed it to cloppy and I remained on that for the rest of the year. Bruising and bleeding the same but no longer short of breath. It;s the usual thing though - some medications don;t suit some people...... interestingly cloppy dog is out of patent so nhs patient costs for a year around £2 per month Tricagelor is over £60 a month (just looked it up!)

SpiritoftheFloyd profile image
SpiritoftheFloyd in reply toCalliope153

I'm always amazed the way a medicine can have different effects on different people. Thankfully I've only had the usual bruising to contend with!

Calliope153 profile image
Calliope153 in reply toSpiritoftheFloyd

On both I had the usual bleeding problem - I was being careful in the garden when a completely unprovoked rosebush demonstrated how sharp its thorns were. Used half a roll of kitchen paper to stem the flow from a scratch. The dreary part was the refrain from the husband of "I told you to wear longer gloves" - really not helpful. But my best moment was when I started to speak and I did whole horror movie moment as a little vessel burst in my cheek and the flow of blood was really impressive. That got him worried. Bet we've all got these stories..........

Frenchbulldogsx profile image
Frenchbulldogsx in reply toCalliope153

It's surprising what a little prick can do. 😀🌹

Frenchbulldogsx profile image
Frenchbulldogsx in reply toSpiritoftheFloyd

Thanks, that's positive. I have a reaction to clopidogrel and apparently my hospital use Ticagrelor as its preferred choice.

Jack2019 profile image
Jack2019

I was on ticagrelor and was good with it the first few months, then the terrible breathlessness kicked in. Ticagrelor is the new drug so it is way more expensive than clopidogrel, I believe ticagrelor's advantage over clopidogrel is that if something arises and you need to have an intervention ticagrelor is out of your system much faster therefore allowing the needed intervention to happen sooner and decreasing the risk of bleed out. Otherwise I think they do the same job.

NorthantsSteve profile image
NorthantsSteve

As everyone else has said - I bruised easily and never stopped bleeding once cut. Michael (I think) had a good recommendation for something that helped with putting on cuts but I stopped my Ticagrelor (which 3 years ago seemingly was given to heart attack + stent patients where Clopidogrel was given to angina + stent hearties) before I needed it.

MancTommo profile image
MancTommo

I have been on Ticagrelor for 8 years. I had a heart attack and had a stent fitted, out in tablets (including clopidagril) less than one year later had a more serious blockage (found whilst doing a test at hospital on running machine) thats when I had another 3 stents fitted and was also put in Ticagrelor trail. After the trail, I was told I could stay on them for life, take 2 x 60mg tablets every day, plus ramapril, avostatin, aspirin & lansoprazole. Personally I’ve had no side affects and gives me piece of mind. As when I had first stent I asked what the rest of my arteries were like and they said fine... so to have another problem after a year despite being on blood thinner was a real worry. Since Ticagrelor I’ve been fine

HectorsDad profile image
HectorsDad

Ticag for 11 months with no problems apart from bruising and bleeding (which you get used to). Unusual for me as I react to almost every other drug.

My best moment was scratching a skin tag on my neck in my sleep. Woke up looking like someone had cut my throat. Rings of it dried round my neck, and a big patch on the bedding (probably only a thimble full, but you know how it goes). My wife’s reaction was.... best forgotten, and she laughed later!

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