Is this now the norm?: Hi everyone, I... - British Heart Fou...

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Is this now the norm?

BC4ever profile image
22 Replies

Hi everyone,

I had a heart attack (Inferolateral STEMI, Primary PCI -OM) and stents fitted three months ago. I just don't feel that I am getting any better really. Have maybe one or two good days a week (if I'm lucky), the rest of the time I feel totally exhausted. And doing any sort of task seems to wipe me out. Is this now the norm for the rest of my life? I read on here of people saying they feel like they have a new lease of life, exercising, playing golf, going to the gym etc! My Cardiac Nurse says I'm doing well - blood pressure and pulse rate consistently good. But my chest feels tight (no pain) and my energy levels seem to be zero. It's very depressing and is beginning to affect my mental health. I'm beginning to wonder if it's my medication, as I've felt pretty rubbish since I started taking it all, to be honest. I'm on: Asprin 75mg, Atorvastatin 80mg, Bisoprolol 1.25mg, Eplerenone 25mg, Ezetimibe 10mg, Pantoprazole 40mg x twice a day, Clopidogrel 75mg, Ramipril 2.5mg x twice a day and a Glyceryl Trinitrate spray.

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22 Replies
englishbrian profile image
englishbrian

Ezetimibe can make you tired,

I'm on lots of tabs like you,plus some more.

I had my STEMI over 5 years ago,a widow maker as it is called,

Trops were over 10000,

You will get stronger in time,sad to say for me,another nine heart attacks later I'm now finding things much harder.

Your not on your own,but yea it's hard,

A year after my STEMI I was pretty much back to normal,so give it time,

Your stronger than you think.....

BC4ever profile image
BC4ever in reply toenglishbrian

So are you by the sounds of things! Can I ask you what Trops are? Take care...

englishbrian profile image
englishbrian in reply toBC4ever

Sorry 4 the delay,Trops the full name is Troponin a protein in your blood after a heart attack ect.

your trops after your STEMI should be on your discharge docs,mine were...

Happyrosie profile image
Happyrosie

blood pressure normal?

BC4ever profile image
BC4ever in reply toHappyrosie

Yes. It's been consistently in the healthy range for the last six weeks.

Happyrosie profile image
Happyrosie

it’s hard to say whether your recovery is “normal” as everyone is so different.

You could phone the cardiac nurses on BHF.

You could leave it for a month or two then ask the pharmacist employed by your doctors group of surgeries for advice as to,tweaking your medication.

devonian186 profile image
devonian186

You take way more meds than me and I had a quad bypass. Are they all for your stents or do you have other non heart medical conditions?

We are all different, but might be worth getting that medley of medicines reviewed as some of them might be discordant.

BC4ever profile image
BC4ever in reply todevonian186

I was thinking the same! They are all for my heart, except the Pantoprazole (Hiatus Hernia). I'm coming up to my first full blood test check after my heart attack, so I will discuss it then. Thank you.

Kkarlak profile image
Kkarlak

After your procedures, were you offered and took part in a local NHS rehab course ? If not, see if there is one available. I found it so good, for general fitness building, so you knew what you were able to do and what you should not do exercise wise.

But, also they went into so much detail about heart attacks, what causes them, what to expect during recovery and what the long term outlook is.

Apologies if you have already taken part in one, just thought I would mention it

BC4ever profile image
BC4ever in reply toKkarlak

I'm taking my last cardiac physio rehab session today - but it sounds like they are not as thorough as the ones you had!

Kkarlak profile image
Kkarlak in reply toBC4ever

Oh, that's a shame. Every week we had a different subject, with videos and questions and answer sessions.

It may be worth speaking with your Cardiologist about the meds and seeing if they can tweak anything. I do remember being very tired in the first 3 to 4 months, but feel much better now. Whether that is me just getting used to the new me or not I am not sure.

I know on the rehab course they explained my new max heart beat is now 30 less than before due to meds, so to protect my heart from being over exercised. This really took some getting used to while recovering. For me it was just a case of learning the new limits and working around them.

mesally profile image
mesally

Hello there, some of us make a much slower recovery than others, myself included. Take the walking targets they suggest: I was lucky if I could stagger round the garden and needed a long sleep to recover afterwards! But get there you will. We are all different and must listen to our bodies. Plod on

MountainGoat52 profile image
MountainGoat52

Maybe a review of your medication is due. Quite a few of those you are taking could affect your energy levels. I worked with my GP and later with the Pharmacist at the GP practice to adjust the dosages and actual medications to get a mix that suits me.

I understand where you are coming from when you ask "is this it?" I think the answer is probably No. It will get better, though where you end up, none of us can tell you. Just keep positive and as mesally says, "plod on". In my case I plod up mountains... maybe in time you will too. 😀

sjs1me profile image
sjs1me

Hi, I take aspirin 75mg and bisopropol 2.5 mg in the morning after breakfasts and Losartan 25mg and Atorvastatin 80mg before bed and I had quad bypass in June. I feel quite well. I know we are all different but you seem to be taking a lot, ask for a review.

Hamedk profile image
Hamedk

Hi. All these drugs will definitely cause issues such as tiredness (ezitembe) Atorvastatin Bisoprolol Ramipril Asprin combination gave me pain and was not nice. Do you really need to take so much. You need to talk to your GP. Although it is too early yet as only 3 months have passed. It will get better one they reduce some of them. But you will have to fight your case with the GP if your heart health BP are all good to reduce the dosage.

Ewloe profile image
Ewloe

My STEMI and cardiac arrest was 3 years ago. I like you wanted to be back up and running straight away. The advice I was given on this forum was as follows.

Be patient with yourself it can take 12/18 months for you to feel comfortable with yourself. Over that time you’ll gradually improve and not stay as tired as you are now. Remember if you badly hurt your leg you would rest it. Your heart can’t rest properly so can take longer to recover than other parts of your body. Do what the doctor/ cardiac nurses say, take your meds and accept where you are at present. Go to cardiac rehabilitation. Most of all be kind to yourself and as I say be patient. Good luck.

Qualipop profile image
Qualipop

Talk over your meds with your GP. In my case he total exhaustion was caused by bisopralol. Everyone reacts differently. There are alternatives for everything. It's highly likely to be one of yoru meds causing it. By eh end of he first year I'd had every tablet changed and a lot of hem stopped. I now only need aspirin and a statin. So the answer to your question is NO, that's probably not h ow it will be for life. Your tablets can be tweaked.

Farmer63 profile image
Farmer63

Really on Atorvastatin 80 mg and Ezetimibe 10 mg, that's a lot of statin and another cholesterol lower drug. I was on Atorvastatin 80 mg, but caused me awful stomach problems. So the put me on crestor 20 mg along with Ezetimibe. You should get your meds reviewed .

BC4ever profile image
BC4ever in reply toFarmer63

Thanks. I'm having really bad stomach problems too! My three month review is coming up soon, so I'll speak about getting things changed. Take care.

Jedi14 profile image
Jedi14

Been there, seen that, feel generally miserable! Now almost a year post stents just getting to grips with leading near normal life. Still got a cardiology review coming up in November as heart condition is still changing.

Compared to people before our time, we get a second chance to live again! Modern technology and meds makes all this possible, but with a catch, ongoing continous monitoring, dietary and lifestyle changes.

Bennieblue profile image
Bennieblue

Hi, check out the Atrovastatin. I took myself off it after two years. It effected my muscles so badly I was practically home bound. Only off it for 3 weeks and I feel so much better. Perhaps your doc can change it to a statin that suits you better. Check with doc before doing anything.

Abbyroza profile image
Abbyroza

I’ve had a STEMI and 3 stents 6 years ago. Everything depends on how extensive the damage to your heart muscle is. Mine is very limited, so I started rehab training immediately and was back at my normal exercise level within a month. I take Pravastatine, Ezetimibe, Bisoprolol and Lixiana. Plus supplements Ubiquinol, D-Ribose and L-Carnitine. I feel fine most of the time.

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