Consultant news

[Cherrelleford]

Hey allAfter having DCM for 3 years and going through so many tests, getting an ICD fitted and meetings with the transplant team. I had my delayed meeting with my consultant on Thursday. I have been signed off from the transplant team and the ablation I had has helped. My EF has gone up again to 35% but he said he doesn't know what the future holds but at the moment he is very happy with my progress. I am having my furosemide stopped and my entresto can finally be increased as blood pressure has improved a bit. Only downside is I have nerve damage from my ablation but there's nothing he can do about that. I am feeling positive which is something I have struggled to do over the past 3 years.

Thanks for taking time to read my post x

[EarlyRiser2]

Hi CherellefordWe are in a similar situation to the journey you have been on. My husband was diagnosed in February with DCM and prior to that with persistent AF. His EF was 15% and hadn't improved when we had his check up with transplant team in May. Good news was it was no worse. He's just had cardioversion for the AF which sent his heart into shock. 3 days on ICU and 4 on CCU. He has a normal heart rhythm at present. His BP is often low but he had been tolerating the high rate of Entresto prior to the cardioversion.

Thank you for sharing, it gives hope that his heart can improve. It's such a scary time and wasn't what we expected at all! I hope you can tolerate the next dose of Entresto and see more improvements. Stay well x

[Cherrelleford in reply to EarlyRiser2]

Thank you. I won't lie it's been a struggle and have wanted to give up. But I'm happy that improvements have been made. I wish all the best to your husband, it takes time but improvements do come. Take care x