Hi everyone just to keep you all posted on what happens next!.I had an appointment yesterday with the surgeon in my general hospital, she was lovely and explained things really well. The good news is that it has not spread and as it's slow growing it will be next month before they operate. It will be up to my cardiac team where it will be done, she said they might be fine with it in my local general hospital in Paisley or they might insist it is in the Golden Jubilee my transplant hospital I will hear in the next couple of weeks where I am going.
The not so good news.
The cancer is right at the top so they will have to take away the whole left side and the lymph nodes as the blood supply will get cut off so the op will be longer and so will recovery, more so with my heart etc so once again I will put my faith in the NHS .
Her parting words were have a lovely festive season carry as normal eat drink and be merry 🎄🍾and that's what I am going to try and do. Take care char xx
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Try and stay focused as I know you will on that positive news that it has not spread and they seem confident they have caught this and there is something now they can do which I was so pleased to read that news
You eat drink and be merry this Christmas you deserve it
You have been in my thoughts, glad you liked the surgeon so pleased there is no spread but the position will make recovery a bit longer. I know like me loved the Golden Jubilee, you felt very comfortable there well taken care of, and your transplant team are based there.
Try and have a good Christmas, remember you are going to be well looked after and a great recovery is expected.
Thank you, I will just have to play the waiting game whether it will be the RAH or the Jubilee the surgeon said that greater Glasgow health board are not allowed to make any referrals to the Jubilee so it will be up to my cardiac team where I will go. I am trying with difficulty not to think about it too much and get organised for Christmas, I haven't told mum yet I am going to wait till I get a date for Surgery before I tell her, she is awful confused now I don't want to upset her and on the other hand she might immediately forget what I said. Char xx
oh char, trying to decide about telling your Mum is a difficult one, I know with John he wouldn’t have remembered me saying anything. It’s very easy for us to say put it on the back burner until after Christmas but impossible for you. Please know you are in so many people’s thoughts and prayers. You are one strong lady.
Thank you so much for your support and I hope you are keeping ok it's such a bad time of year for flu and the virus we can't mention. Take care char xx
Hello Char, never been easy for you has it. But you are such a fighter. Try and enjoy Christmas now. You definitely deserve it. 🎄💖 thinking of you. Andrea xx
Thanks, I will have to get into gear and actually do something, I had put it on the back burner in case the news was worse and they started treatment right away. No excuses now I better get my tree 🎄 out the loft. Char x
Such a lot to take it but it sounds like there is a plan which, if you're anything like me, will (hopefully) offer a focus and hope.Enjoying Christmas and carrying on as normal sounds like a good interim plan. 🎄
Thanks, I think I have already forgotten some of the things the surgeon said but the nurse has given me her mobile number so I can phone at any time if I want to ask any questions. I am going try and not dwell on it too much and get myself and the house ready for Christmas 🎄 char
Thanks for the update. Thinking of you. ‘Carry on the best you can’ might be a better phrase, as well as ‘do what’s best for you’. Hope you get a date soon so that you’ll have that to focus on. Very best wishes.
Thanks, I am hoping that I will hear what the date will be and what hospital I am going to soon but with the holidays coming up it might be the beginning of January. Char
I am really pleased about that it was hard waiting to see the surgeon for biopsy and scan results but thankfully it was ok, just the thought of another op is not good. I am trying not to think about it too much over the holidays. Char x
Sorry you are going through this but focus on the good news and try to be positive.(easier said I know) enjoy your Christmas and good luck for the new year x
Thanks for your support, I am going to do my best not to dwell on it too much, I will be glad when I get a date and I know what hospital it will be in. Char x
So sorry. Maybe things will go better than you fear. In any case do try to squeeze any happiness you can out of daily life. Warm good wishes , Tavishock
You are a inspiration to me and all on here, I have been moved by your post, and I have no doubts you will be posting on this forum for many Xmas to come have faith in your NHS team, and you will be in my thoughts and many others on this forum, all my love goes out to you, stay strong
Good morning I am pleased it has been caught early and I know several people who have had it and they are still going strong years later with no more problems . It might be good to be in the hospital where yor transplant team is though heaven forbid you would need them better safe than sorry . I am sorry it will a longer recovery time for you though Try to enjoy Christmas
Thank you, I think I would feel safer in my transplant hospital, it used to be a private facility and it has no wards just private rooms. The surgeon I spoke to is at the general hospital and she instilled a lot of confidence in me. I will just have to be patient until I find out where it will be done. Char x
Hello Char. Such good news that it hasn't spread. You've been through such a lot and you'll sail through this operation. Your lovely Mum doesn't need to know anything just yet. Wait for the date to come through and then perhaps tell her. When I told my Dad (early dementia days) when I was diagnosed with cancer and it seemed to go in one ear and out the other.
Get up that loft and get the Christmas tree up!!! We're all thinking of you.
Thanks, I think if I told just now she would initially be confused and then forget and I would need to go through it all again. I take her to all her clubs and go round every day she is going to be a bit bewildered about where I am, it's such a shame. The tree 🎄 is definitely coming down this weekend it will cheer the living room up and we need more lights it's so dark and wet at the moment. Charx
Hi Char. It might be better not to mention the C word! If your Mum coped with your recovery after the transplant, she'll manage. Is there anyone who could pop round to see her while you're in hospital and recovering?
It's pretty dreich (dreek) here in Birmingham. We've just dragged our tree out of the loft! Might as well just stick a bag over it and leave it in the corner of the living room all year to save the hassle!!😂.
😂mine is still in the loft, the other half is on early shift next week that will be his first job 🎄. It is very dreich in the west of Scotland we moaned last week when it was lovely and sunny but snowy now it's gone the temperature is up and we are still moaning 🙄.Because we were in lockdown when I got my transplant (July 2020)I couldn't see mum till Christmas so it wasn't too bad for her and she could understand a lot more back then but now with dementia I will have to think what to say I am not sure if she will take it in or just forget what I said and wonder where I am as it's me who takes her everywhere. I have a brother but he stays in Glasgow and he works a lot, he will be out but he won't be able to take her to her club or anything. I will just hold off until nearer the time and see how she is. Char x
Blessings for the good news! Knowing that the cancer has not spread and that it is slow-growing is VERY good news to hear! That does sound positive ❤️.
I am so sorry that you have had all of this to deal with. Some things are just overwhelming to hear and experience—and we each have different levels of total overload.
When I read your original post, I could really relate with how you were feeling. I had a HA in March 2022; had cataract surgery in September and October 2022; had a bone density test and learned that I had osteopenia that same year; and my doctor had me do a Cologuard test that May.
I joked with my Mom about the Cologuard Test. I said, “ I’m falling apart, but at least, I’ve got this test! This will be easy and I should pass with flying colors!” When I got my results, it said “cancer” and I felt absolutely gobsmacked. I was scared, angry, confused—just every emotion.
Long story short, I had to wait 10 months for the colonoscopy. I have anxiety and panic attacks, so I literally forced myself not to think about or talk about it all. The week of the colonoscopy, I got a cold and I was coughing so much that I had to cancel the procedure. Thankfully, the hospital/doctor could reschedule me for the following month. I had the colonoscopy, and they removed four precancerous polyps. I was so thankful that it all went so well.
I know that your “not so good news” can feel overwhelming too, but you can do this. You sound like a very strong person, who has already come through so much! Your doctor sounds knowledgeable and lovely, and you have so many people who support you!
I hope that you will allow yourself to enjoy the holidays completely. 🎄🎄. Put thoughts about medical issues and procedures on that “back burner of your mind” and just savor the smells, tastes and love of the holidays with family and friends.
Thank you, it does get a bit overwhelming at times and with mum having dementia I feel like I'm run ragged maybe a good thing I don't have time to think about it too much 😂.I will be glad when it's all over, recovery can start and hopefully by this time next year it will be a distant memory 🤞🤞xx
I’m so sorry to hear this news, I feel my worry pales in comparison to your current situation now and you so kindly still took the time to offer me comfort, thank you! This is just testament to the kind and brave soul that you are!!
Hope you enjoyed your Christmas 🎄
Sending you best wishes for a date soon and even better news in the coming months! 🤞🏼
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