what’s life like with permanent AFIB. - British Heart Fou...

British Heart Foundation

54,328 members33,995 posts

what’s life like with permanent AFIB.

Jetcat profile image
10 Replies

hi you lovely people. I just wanted to get an idea of what life is like when our afib becomes permanent.? I’m feeling abit low lately because Iv been getting quite alot of AFIB episodes lately. Alot more than usual and Although only short ones 10 mins to a hour it’s beginning to pray on my mind.!!! I was doing well until about 12 months ago but I get daytime ectopics for up to 2 weeks at a time too so it’s starting to get to me a little to be honest.!!

I have got a cardiologist appointment soon too which I’m grateful for. I don’t think I’d be that bothered if I was older but I’m nearly 56 and still working full time and thankfully not a strenuous job.👍 I’d like to hear from someone who is in permanent AFIB and still able to work or go for walks etc. I do apologise for sounding rather depressing. I have had 3 PVI ablation’s in the past and was doing good but recently it’s starting to make an appearance again.

All the best.

Ron.x👍

Written by
Jetcat profile image
Jetcat
To view profiles and participate in discussions please or .
10 Replies
beardy_chris profile image
beardy_chris

AFib is different for everyone. For me, going permanent wasn't an issue because I'm fairly asymptomatic. It is better than the unpredictability of paroxysmal AFib. Your mileage may vary, of course.

Jetcat profile image
Jetcat in reply tobeardy_chris

Thanks chris.👍

Deejay62 profile image
Deejay62

I’m in permanent Afib but I can’t explain it. For years my heart as quivered, skipped beats, gone fast, sometimes I get stabbing pains and some times it feels like it’s stopped, but obviously I’m still alive

The other day I had a HF cardiology appointment. It was worse walking once I got out of the car, but often it’s like that. Most days breathlessness is at another level when I’m walking. When I received my cardiologist report it said I was in Afib. I didn’t know that, while sitting I felt nothing.

I don’t worry about VTs, afib or any of the other ones. I’m on anticoagulants so I don’t get clots.

I have so much going on with my heart kidneys and lungs. My main worry is getting shocked by my device if I’m out. And sometimes wondering when it’s going to stop completely, because it will do.

Jetcat profile image
Jetcat in reply toDeejay62

Thankyou Dee. Much appreciated.👍

devonian186 profile image
devonian186

Sorry to hear this. Has anything noticeably changed over the last year either with your diet, lifestyle, relationship?

Could anything else be triggering it, electrical impulses such as a server in your bedroom, mobile phone left on next to your bed, moving to a more polluted urban environment?

Jetcat profile image
Jetcat in reply todevonian186

I can’t think of anything that’s changed apart from switching from magnesium oxide to magnesium citrate and also having alot of trouble with carpal tunnel syndrome and on waiting list for a procedure ! Without sounding pessimistic I think it’s probably just normal progression of this condition.?? I may be wrong.? I’m still trying to keep positive but it messes with my head somedays? Iv got a cardiologist appointment coming up soon at end of month so I’ll bombard him/her with some questions.

Thanks dev186.👍

devonian186 profile image
devonian186 in reply toJetcat

Good luck. Make sure you write down the questions and answers as its very easy to forget, as we all know!

sandandkev profile image
sandandkev

Hi I'm 66 and ended up in a&e July to be told have permanent AF,my heart flutters all the time,wasn't offered anything else,but put on bisoprolol,but had it decreased as heart rate went down to 58 often which made me feel ill,still waiting for a consultant appt!!

Jetcat profile image
Jetcat in reply tosandandkev

Thanks sand. Are you taking anticoagulants.?

sandandkev profile image
sandandkev in reply toJetcat

Yes on endoxaban 60mg od

Not what you're looking for?

You may also like...

Permanent Afib

Hi everyone, I was diagnosed with persistent Afib in August when I ended up in hospital with...
Mollykin profile image

Permanent AF

Hi is anyone else in permanent AF I ended up in hospital 3 weeks ago as couldn’t breathe, heart and...
Mollykin profile image

AFIB

Hi all wow I had a bad night last night and nearly phoned an ambulance as my heart rate peeked to...
buddy2blue profile image

Afib attack

Hi I’m new to this group I have hypertrophic cardiomyopathy heart disease and I had my first Afib...
Pinky100 profile image

My Worries returning…

been a couple months of my anxiety being lower about my heart. Like I managed to tell myself I’m...
Dshadzz07 profile image

Moderation team

See all
HUModerator profile image
HUModeratorAdministrator
Luke_BHF profile image
Luke_BHFPartner
Amy-BHF profile image
Amy-BHFPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.