Blood test came back fine? But still doesn't add up how I been feeling?

[Yumz199725]

Honestly, i just don't know what's going on everything is fine bloods normal but I still don't feel right it's weird weird tight sensation in my chest and the pain in my back, hopefully my doctors appointment tomorrow should shed some light on what's causing this or is just my heart getting worse because I've been the doctors so many times about everything and not getting anwhere! 😣

[JessicaRed]

Poor Yumz hope tmrws appt will shed light on whats wrong, it certainly sounds worrying and someone needs to listen and pay attention to you

❤️

[Yumz199725 in reply to JessicaRed]

Thanks hun x yeah I'm getting worried now not gona lie the tight feeling lasted about an 1 hour and then i feel fine now so strange! 💔

[Cavalierrubie]

Hi. Glad your blood tests came back ok, that’s a very good start. I hope your doctor sends you for some X-rays and whatever else he thinks should be done. Let us know how you get on and wish you all the best for tomorrow. Xx

[Yumz199725 in reply to Cavalierrubie]

Thanks for your lovely message, if I don't get anywhere with my GP I will contact my heart team and see what they advice x 😕😐❤️

[Cavalierrubie in reply to Yumz199725]

❤️ Let us know how you get on tomorrow. Love and prayers. 🥰

[Tos92]

Have you checked your oxygen levels and BP during these episodes Yumz? X

[Yumz199725 in reply to Tos92]

I checked my oxygen levels and they were fine and heart rate was 98 which is normal for me. Wasn't able to check my BP though but if it happens again will definitely do that X

[Heyjude31]

Take good care Yuma199725, do you get digestion problems? Also anxiety can always make these things worse. Let us know how you get on. Thinking of you, Judi x

[Yumz199725 in reply to Heyjude31]

Thanks I think it's probably alot of things causing this but I'm not sure so I need to find out x

[Threecats]

Hi Yumz

I’m sorry to hear about what you’re experiencing. I know how frustrating it is when you know that something isn’t right but every test comes back fine. I was put on Bisoprolol for AFib about 18 months ago. Everything was fine for 6 months but then I started getting chest tightness and shoulder pain when walking which gradually got worse until it affected everything I did. I was fobbed off with the anxiety diagnosis initially being of a certain age 🙄 and was told categorically that it couldn’t be the Bisoprolol as it was such a small dose … eventually it turned out that it was!

I do hope you get some joy from your doctor today but get onto your heart team if not. You need to get to the bottom of what is causing your symptoms.

All the best to you and hoping you find an answer soon, TC

[Noodlesalad in reply to Threecats]

It's far to easy to be fobbed off with the anxiety and age thing when we know how to differentiate between the two. I'm always open to the possibility of age/anxiety however I'm also aware of the umbrella diagnosis of these two when some professionals just don't listen.Loved your reply sound advice and understanding.

[Threecats in reply to Noodlesalad]

Thanks Noodle. You’re quite right in that I’ve been a lifelong anxiety sufferer and am well used to the way it can manifest itself in physical symptoms but like you, am also able to differentiate between the two. As you say though, I have had experience of some professionals putting me in the “anxious middle-aged woman” box before I’ve even sat down! Fortunately, age also brings the ability to speak directly when needed😀

[Noodlesalad in reply to Threecats]

Sometimes we're dammned if we do and damned if we don't.On a humerous note. I've just come back from the supermarket and finding the shortest check out queue is not always a smart move. I chose a queue with three people each with a trolley, the lady in front of me her trolley was stacked so high even Sherpa Tenzing would have given that precarious mountain a miss. Part of me with my paltry melon wanted to shout "Woman of a certain age not wearing a bulky pee pad coming through" , naturally I didn't it was one of those many times that despite my knee giving way and back pain I found my inner humour and played my scenario in my head and smiled.

I knew there were two school children behind me so I ushered them to go in front of me as it was the right thing to do. You can't imagine my astonishment when they got to be served with one item each their mother swooped in like an unseen SAS soldier loaded with an arm full of shopping!!! Talk about using your kids to play on people's kindness, then I thought clever girl.

From one lady of a certain age to another We will not go unseen.

[Threecats in reply to Noodlesalad]

Your supermarket shenanigans made me laugh, Noodle, thank you😀 I can relate to your swooper story, having once ushered a frail elderly chap clutching a loaf to go in front of me, whereupon his wife, I assume, steamed through with a trolley load of shopping. I was so stunned I didn’t say anything! Was a lot younger then😀

Power to the sisterhood! 😀

[Noodlesalad in reply to Threecats]

Old men and young children they'll get you every time, laughing😁 xx

[Yumz199725 in reply to Threecats]

Ahh so sorry you had similar issues glad that you got to the bottom of what caused it are you on a different medication now or a lower dose? Yeah I will be telling my heart team at my appointment on 21st anway because this pain is weird it's always there? Since Friday? So strange I think I'm falling apart 🙈x

[Threecats in reply to Yumz199725]

It sounds like you’re really struggling there Yumz and I’m very sorry to hear it. Make sure you tell them how it is. As for me, I was switched to Verapamil by a rather grumpy EP who was convinced it wouldn’t make any difference - it did! I hope you can get things sorted soon x

[Yumz199725 in reply to Threecats]

Thanks hun x what dose you on I'm on 40mg x2 a day.

[Threecats in reply to Yumz199725]

I’m on 80mg x3 a day and a daily wagonload of prunes and flax seeds to deal with the main side effect of Verapamil😳😀

[Noodlesalad]

Bless you, you're really going through it right now.Hopefully as you say perhaps your GP will be able to help you. We all worry when we know something is not right with us physically and yet blood test comes back normal.

Stay strong, explain to your GP what your experiencing, hopefully they will be able to offer you some answers.

Sending you a virtual hug.

[Yumz199725 in reply to Noodlesalad]

Ah thanks yeah I know what you mean I thought maybe it was thyroid issue would of explained sooo much but obviously it wasn't so now I'm more confused then ever. 😞💔x

[Sunnysummerdays]

Good luck Yummy👍

[Yumz199725 in reply to Sunnysummerdays]

Ah thank you x

[Jerrahem]

hope things going to be alright for you 🙏

[Yumz199725 in reply to Jerrahem]

Thank you! ❤️

[Hidden]

I feel for you yumz. As you know iam a bit new to this congenital heart journey. But I had bloods done a few weeks ago and they came back OK except my creatinine. Which then causes the kidneys to become sluggish. Have reduced my lisinopril and stopped spironolactone and the creatinine has reduced and kidney function has improved. But I still feel not right. I carnt really explain it. I think alot of it is mental, anxiety knowing I have a faulty heart now. I suppose by reducing the lisinopril has helped to increase my blood pressure so I don't get this posture dizziness when going from bending down to standing up. But I think I need to go back on the spironolactone? But I don't want my kidneys to play up. But I am not medically trained and the human body is so complicated. You carnt really think of it as a machine.. my condition is rare 1 in 200000 births but all the people who have my condition vary from one extreme to another. But we have to live with our bodies and we know when things are not right. But that's when the mind starts to panic because you carnt fix it yourself and you carnt explain it to your mind. You take care and hope you get some answers

[Yumz199725 in reply to Hidden]

Ahh thank you! Aw so sorry about the effect spirolactone had on you what dose was you on I was on 25mg for six months bout 3 and a half years ago. Can they maybe reduce your dose or find an alternative medication to help with the dizziness?? x yeah I've known something isn't right for a while but I will see if it's just in my head or something is wrong I hate what anxiety does to your mind! I am trying sooo hard not too Google everything learnt my lesson! X

[Hidden in reply to Yumz199725]

Same here googling is a pain. I was on 25mg spironolactone then I halved it to 12.5mg because my potassium went up. Unfortunately I had my stress test while I was on 12.5mg so I don't know if my stress test would have been better if I had been on 25mg? My gut feel is to reduce lisinopril or stay at 20mg and go back on 25mg spironolactone. But iam not the expert. The trouble with both medication is that they reduce blood pressure. And they have done this very well but you use them for heart failure, but I don't have heart failure in the true sense of the word. But as my right ventrical is not working efficiently due to the congenital problem then you are treated with these types of tablets. But when you don't feel right you can't seem to explain it very well. Because anxiety then causes similar feeling or it mimics the heart sensations. I have gone back to 50mg of setraline and have only been on this dose for about 2 weeks. But iam so angry and annoyed with myself.

[Deejay62]

Hi Yumz let us know tomorrow how you get on. It is very frustrating when you’re feeling in a certain way then everything comes back normal, don’t forget to mention the pain tomorrow. You might have to ask your doctor for an X-ray like someone else said. Was it you who had an mri scan recently? All the best for tomorrow x

[Yumz199725 in reply to Deejay62]

Thanks mate, yeah I hope the gp knows what's wrong I will still be mentioning to my heart team when I see them on 21st anyway. Yeah I had one on 11 th of September? x

[Velda1]

Good morning...I've just had my bloods taken today to see whats happening. I had a Massive Heart attack while on holiday in Canada fitted with 4 stents (i was lucky, nearly lost me twice), so a 3 week holiday ended up 10 weeks... I also have had tightness in chest and back pain and complained about this from day one. I've had no answers either . Keep in touch so we can hear whats going on with each other

[Yumz199725 in reply to Velda1]

Glad you back from your holiday! Hope your blood test shows what's been happening hope your not waiting too long for blood test x where did you get the back pain and how long for??? X

[Velda1 in reply to Yumz199725]

I have had the pain in my left shoulder and down behind my heart since my op for stents. About 7 weeks, its a dull ache and sometimes gets worse if I've been walking.

. Tightness in chest is causing a cough, just spoken to doc and they seem to think its Acid Reflux causing that...AGH!!!!

[Yumz199725 in reply to Velda1]

What! That's probably what they will say to me dreading this appointment 💔. It's so not acid reflux!! For you I mean x

[Classof1988]

Praying for an end to the pain, and for wisdom to understand what is really happening so you can get the right treatment.

[Bunkular]

I am in a similar situation but I'm older and I am on BP meds. Is there any chance that you have nerve impingement in your neck or spine? I have chest pain that comes and goes as well as occasional pins & needles in neck, arms and shoulder. When I get physiotherapy treatment I feel so much better, so my husband bought me a Tens gizmo that I use on my neck which also helps. MY GP sent me for an MRI a year ago and it showed C6 & C7 cervical "wear & tear" that probably came from whip-lash from a long ago car accident when someone crashed into me from behind, so that's why my doc had the tests done - nothing showed up with heart damage except for palpitations and MVP. Were you involved in anything where your spine was traumatized?