Appointment Update

[Livelovelife56]

Good morning My 16 year old had his 6 monthly check yesterday. Echo & ECG and consultant.

So consultant has advised that he starts medication Lorsarten 25mg at first to see how he gets on. Because he is also waiting for a referral to respiratory clinic she will wait till after this appointment before prescribing Beta Blockers in case he has asthma.

So firstly thanks guys for the information which sort of helped me prepare for this. Secondly I'm in complete shock as previous Dr's stated he was doing well and any intervention was a long way off. This consultant we saw yesterday has been on maternity leave and was clear and concise that she wants to slow down the progression of his aortic root dilatation. I am grateful for her honesty and her forward thinking but I've just consented to my child to start the same medication I'm on. I can't get my head round it...yet

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hello I don’t know anything about your son’s condition but having the right cardiologist means so much and I’m happy that you and he has that.

it’s not a surprise why you’d find it difficult to get your head round you both taking the same meds. I’d certainly find it terribly hard if I were in your shoes.

but it’s a start to helping your son so that’s the positive to focus on, but nonetheless a worry for you as his mum.

Keep us posted on progress.

❤️