Edoxaban requirements : anyone know... - British Heart Fou...

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Edoxaban requirements

NLGA profile image
NLGA
12 Replies

anyone know what the requirements or test is for Edoxaban

My cardio doctor mentioned taking me off it as I’m in a grey area

I do have AF my echo was fine I am booked to have a aniogram

He mentioned as I am under 65 I fall into a grey area which I don’t really follow

I had 2 spells in hospital pulse 178 stayed at 140 -150 for 4 days discharge 6th day and 5th day from hospital this summer

Current BNP 485 so just in the possible heart condition zone

Just seems strange to consider stopping it as I thought AF sufferers were more likely to get a stroke ?

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NLGA profile image
NLGA
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12 Replies
Troilus profile image
Troilus

This is from the NICE guidance.

mdcalc.com/calc/801/cha2ds2...

NLGA profile image
NLGA in reply to Troilus

going by that I can see why he says to stop it just with AF amd 484 bNP I thought he would keep me on it

MichaelJH profile image
MichaelJHHeart Star

Could your BNP level be related to something else? Conditions such as kidney disease, COPD, pneumonia and many others can raise it. Mine got elevated as the rest of a crush injury that broke and cracked a number of ribs. Sometimes we have to think outside the heart health box!

NLGA profile image
NLGA in reply to MichaelJH

take your point but kidney liver ok on the same blood test ,CT scan clear if any issues in my lungs

I had pneumonia in July but the test was 23/12

Minorca2020 profile image
Minorca2020

I was put on it when I was 62 after a HA caused by a probable clot due to AF. I was swapped to this as I was having bad side effects with the earlier drug combination. My cardiologist didn’t mention anything about a grey area and I wonder what that is? Am going to be checking into that now.

NLGA profile image
NLGA in reply to Minorca2020

it’s from the chart and then age taken into consideration plus the BNP count 100-400 is what he said was a grey area

Christabelle27 profile image
Christabelle27

Hi NLGA I am 73 year old female and started wit AF five years ago and was started on Riveroxaban blood thinner then three years ago was changed to Edoxaban. The only tests I had in the five years was ECG, blood tests, angiogram and heart scan. My understanding is if you have AF regardless of other health issues you should be on a blood thinner because of risk of stroke. Yes there is a scale but my opinion is if got AF better to be safe than sorry.

NLGA profile image
NLGA in reply to Christabelle27

that’s my understanding of it so I was surprised he mentioned o could come off it he said as I’m under 70 the risk is less surely lifestyle is more important than age

Cazza1953 profile image
Cazza1953

I have been on edoxaban since I took my first (and the other 9 attacks during the course of 5 months ) AF attack in May 2018 at first they were going to give me aspirin however changed to edixaban because I was just about 65 really don’t know why they have taken you off it

Reggaelover profile image
Reggaelover

I’m 63 and was advised to take edoxaban after I went into AF last July as I was close to the threshold age of 65. I was fortunate that my AF symptoms were relatively mild. The AF was corrected by cardioversion in November 2022 but I am still taking the edoxaban, at least for the time being. I should add that I have a leak (regurgitation) in my mitral valve, which is significant but with no symptoms. My cardiologist believes that the mitral valve leak may have caused the AF. A recent CT angiogram revealed no significant coronary artery disease and I have been referred for mitral valve repair surgery in an attempt to preserve my currently normal heart function - watch this space.

NLGA profile image
NLGA in reply to Reggaelover

so your echo didn’t pick up the valve issue ?

Reggaelover profile image
Reggaelover in reply to NLGA

Yes, the valve leak was picked up on an echocardiogram back in 2014 when I had my first episode of AF after competing in a 10k race - the AF was corrected by cardioversion. The leak was diagnosed as mild and the cardiologist monitored it annually. Unfortunately, the AF returned last summer after some tough hill walks and the cardiologist indicated that the leak had worsened - hence my referral for mitral valve repair surgery. Apologies for not giving the full picture - I was trying to focus on the edoxaban, which only applies to the most recent episode of AF.

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