I'm 38 and have been diagnosed with moderate TR. I've been referred for a cardiac MRI to see if there is any other disease going on before they decide on the right course of action.
Of course I have been googling and I'm petrified of the prognosis, and it becoming severe very quickly. I went from mild TR to moderate in under a year. I also suffer with SVT (heart rates of up to 250 bpm).
Does anyone have anything similar, and what has been done about it? I'm scared of the idea of surgery, but have been reading more about the mitraclip procedure. Has anyone got any experience of this procedure?
Thanks in advance,
Hannah
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Hana2106
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Docs. are not inclined to repair tricuspid regurgitation unless they are operating for something else as well. I have severe tri regurg. Had it for about 10years plus,now in my 80's.It does not bother me and the docs think to leave well alone and not to do clips. Also i was told clips are not always successful so do get the best info. on this as to whether it is going to improve your quality of life after an op. for clips, perhaps not.
Thank you for your reply, I really appreciate it. I hope you’re ok and glad it isn’t bothering you. I’ll have a look further into more info about whether to just leave it and monitor it.
I don't suffer with tricuspid regurgitation but I do have bicuspid regurgitation and it's moderate to severe and its taken me a long time for it progress it can be gradual but like yourself can be very sudden and quick to progress so I'm glad that they are doing tests to see what the next plan of action is. I'm actually having an MRI myself they told me eventually I will need valve replacement surgery I just hope it's not yet. Sorry to hear about the SVT sounds really uncomfortable. I have VT which is horrible the palpitations that I had literally felt like my heart was dancing all over the place was affecting my sleep everything.
I haven't got any experience on the mitraclip procedure but I'm sure there's plenty of other people on here who have experience with that procedure.
Wish you all the best for the future and hope you don't need surgery (yet 😉)
thanks so much for your reply! Sorry to hear about your regurgitation and VT. It must be really hard to deal with, but hopefully you have the right meds to manage it until possible surgery. I think the issue is when there’s something wrong with the heart, it’s always playing on the mind which can worsen symptoms even more. Palpitations are just awful. Wishing you all the best.
Yeah they are so awful!.Yeah I've recently, well I say recently since May of last year been on verapamil 40mg x2 a day which has really helped didn't realise how much I needed them. Your so right about it playing on your mind I have asthma aswell it's bit rubbish at the moment so that isn't helping I will definitely get some peace of mind when I get i have my tests in a few months.
I had an echo in November and my Cardiologist rang me the same day to tell me my TR had gone from moderate to severe since my last echo 2 years ago and the right side of my heart wasn’t working properly snd I have pulmonary hypertension at 60. I also have a pacemaker and had my AV node ablated.
He said he wanted to send my results to a professor that uses the Mital clip procedure to see what his team think.
He told me it would be a couple of months to hear back. I have been looking into the clip and have read it isn’t always successful and that if it doesn’t work, once you have it you can’t decide to have OHP, so I’m very worried about that.
At you say, having a heart problem does play on your mind.Having the leads of my pacemaker already going through the valve I don’t see how successful the clip would be. I just turned 69 and I have heard the Clip is usually for older people who couldn’t cope with the OHS.
In the meantime I’m feeling pretty terrible and have lost 4kg,
I think the main thing would be to ask a lot of questions about the procedure and find out everything you can before you decide. I’m going to get a second oninion from a Cardiothoracic Surgeon, which all takes time.
On the bright side you are only young so I’m sure
They will be able to do wonders with you, best of luck with whatever you decide.🤗
hi. I had moderate tricuspid valve regurgitation when I had my first mitral valve replacement via ohs. They didn’t bother repairing it that time and it was still moderate when I had my mitral valve redo a few months later. At that point they repaired the tricuspid valve too as I think it was a case of they might as well do it when they were in there. Nobody at all seemed bothered about the tricuspid valve regurgitation, except me of course. I do think it’s a case that they leave well alone unless you are having other surgery. X
Honestly Hannah, I'd e careful googling too much, you can often read false information.
Secondly ,I had problems with my aortic valve, not my mitral valve, and at the age 0f 73 , had to have open heart surgery. In the unlikely event you need surgery, please don't be scared. You are very young.
I got through my operation just fine. Heart ops are so common these days, all the staff will be amazing & look after you very well.
thank you so much for your reply. I hope you are keeping well after your surgery. I’ve also just discovered I have pulmonary hypertension so need further tests on my lungs. It’s all a bit too much to take in x
I was ablated for atrial flutter 3 years ago and told I had mild to moderate tricuspid valve regurgitation. They do not seem bothered about this and so I had stopped worrying. Unfortunately I just had an episode - 220bpm on and off for 4 hours, so back on Bisoprolol. They think it is SVT. Not sure what happens next, possibly another ablation.
Sorry I am not answering your question, but just identifying with your concerns xx
Yes, wipes you out doesn’t it? Have you been ablated or do you take meds? My last echo was pre ablation in 2020 - everything was normal, except a tricuspid valve which was a bit leaky, but they didn’t seem bothered about that. Are you a similar age to me? (55)
Yes it really does. I’m just on beta blockers for now as I also have been told I have pulmonary hypertension which is worrying me so much until I have more tests to see if I have a lung issue which may be causing the leaky valve.
sorry you are having these worries - I hope that the tests establish the cause and that you can receive the treatment that you need to feel 100% again.
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I hope they get it under control with meds soon.x
Moderate to severe aortic regurgitation 
Regurgitation 
Mitral and Tricuspid valve failures. 
Mitral valve prolapse and mitral regurgitation
Mitral valve regurgitation
