Leaky heart valve. : I've been told I... - British Heart Fou...

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Leaky heart valve.

Bager profile image
10 Replies

I've been told I've a leaky heart valve by an under doctor on the phone. I don't understand this condition. And my own heath clinic hasn't been told about it. I'm to be given a test yearly to keep an eye on me. This is after a Tia 10 months ago. There's no one to explain it to me.

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Bager profile image
Bager
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10 Replies
Kristin1812 profile image
Kristin1812Heart Star

I am sorry you are short of information. If you search ‘BHF leaky heart valves’ you will get some good clarity. My mitral valve has been monitored yearly with an echo, and it’s taken a few years to worsen (slightly) from mild to moderate. Cardio tells me they will not even consider surgery with me unless it gets to ‘severe’.

If you need more your GP should be able to clarify things for you.

Bager profile image
Bager in reply toKristin1812

Thanks for your reply. A doctor is phoning at the end of January. So will ask more then. We cannot get to see a doctor down here in Sussex. Must be the same all over now.

Kristin1812 profile image
Kristin1812Heart Star in reply toBager

That seems a long time….is that wait for a phone call or face-to face?

Kristin1812 profile image
Kristin1812Heart Star in reply toKristin1812

Sorry, I realise you said it was phone. It’s not so bad around here….but that’s no comfort. You do need some clarity. Wish things were working better for you.

Dear Bager

What an awful way to receive this type of information on your illness.

I can only presume that this was after tests done, maybe it’s down to the pandemic that they told you this way, but that does seem odd and a little heartless.

I would contact them and maybe get a face to face appointment with someone that can explain the diagnosis with you.

As Kristin1812 has already said that all heart problems have stages, from mild to chronic.

I hope that yours is on the mild end.

Take care

Bager profile image
Bager in reply to

Thanks. For your reply. It's makes me think mine must be mild as I can still do thing's like walking and gardening.

danny10 profile image
danny10 in reply toBager

People with very severe leaks can be completely asymptomatic..

Bager profile image
Bager in reply todanny10

Didn't know this. Thanks

Beatles1956 profile image
Beatles1956

Hi Bager. My mitral valve regurgitation was probably there for a while before it was diagnosed with an echo. It was "mild", and I could cope perfectly well at that level. Later, I found I was struggling a bit more, and an echo showed that it was "severe". That then led to a repair op. It would be helpful to know how"leaky" your valve is, but it's good that you are now in the system and will be monitored!😀

Bager profile image
Bager in reply toBeatles1956

Yes I am glad that I am now being monitored by the hospital.

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