Thanks ❤: Just wanted to say thanks to... - British Heart Fou...

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Thanks ❤

Helly75 profile image
21 Replies

Just wanted to say thanks to the people on this site who have offered advice & support since I joined, not having anyone in my life who could understand my condition has been really hard & distressing for me. If it wasn't for the knowledge of lived experience from lots of you I don't know how I'd have coped . So thank you all & I hope you all have a great Christmas xxxx

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Helly75 profile image
Helly75
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21 Replies

Hello :-)

Nice to see your post and I agree there are some wonderful members who give such great advise and reassurance especially to those of is that tend to struggle that bit more and they should know how much they help us so your post I hope let's them know just that :-)

How are you doing at the moment it has been a while since we spoke

I am still struggling but still trying which sometimes is all we can do :-)

I hope you have a lovely Christmas to :-) x

Helly75 profile image
Helly75 in reply to

Hi bekind, glad to see you back ! I agree ,none of us can change anything for each other but I think some empathy & a wee chat can give some comfort . I've barely been able to get out of bed the last 6 weeks but I'm up today & hoping it won't cause a set back ,trying really hard not to focus on the pain but that's easy to say lol. Thank you so much for asking, how have you been keeping ? Xx

in reply toHelly75

Hello :-)

I know it is never easy when you are feeling so unwell but I hope you are pushing with your Consultants and Doctors to come up with more they can do to make this better :-)

I understand though that sometimes it feels like a battle getting the right treatment but we must never give up as I believe it is out there :-)

I know how nervous we feel when we have a set back and then take the plunge to get up again with all the what if's but just take it steady , little goals just little one's and you will slowly feel more confident :-)

Saying this I have been having lot's of wobbles the last few weeks and when it comes to exercise I have become nervous again

It does not help with the world as it is either just everything feels so unsure doesn't it but let's stick together because we can and will get through this :-)

Lovely to see you on here again with an update and keep talking I think that helps such a lot :-) x

Helly75 profile image
Helly75 in reply to

I've managed to do a little bit & I'm def waving a little victory flag for myself 🤣 that's my problem I will try to do more instead of not pushing my luck. I know what you mean about the wobbles, my mind is fully willing to exercise but my body isn't then I get so upset about it ! I agree ,we are all going to get out the other side of this even though its all a bit scary ,you take care of yourself too xx

in reply toHelly75

You keep waving that flag :-D I might get one to :-)

I know what you mean my mind is so full of I will do this and that and then when the day comes I get so anxious

But we will keep going , we will do this :-) x

Geejay1709 profile image
Geejay1709 in reply toHelly75

Oh I so relate to what you're saying and glad you're back 😊❤

jeelpie profile image
jeelpie in reply to

hi Bekind, I have just read your post where you have said you have been struggling, I just wanted to say that you are a very thoughtful person, who at my time of need reached out with kinds words that ment a lot, I firmly believe good things happen to good people which is what you are, thank you for being there at my time of need and please if your struggling let us know so we can return support to you which you give in abundance on this site, thank you x

in reply tojeelpie

Thank You so much :-)

I wished the theory of been the best person you can meant that nice things happen to you I sit and think I must have done something really wrong as all I seem to get is more upset and anxiety

I know it is my ex husband that I married when I was really young we went on to have 2 Daughters and I got remarried again 28 years ago now and had a Son but it has still affected me that on Friday he died with covid

He did have kidney failure even though he had a transplant 10 years ago and his Consultants always said how well he was doing so it is even sadder that this has happened

My girls are in bits so that makes me in bits to as this pain I cannot take away from them

Then I feel selfish because despite all this I am still fretting every single day over my heart and believing my Bypasses have not worked

I wake with anxiety attacks now and some days well most days I feel I just cannot go on living like this yet I feel I try so hard but nothing works

Sorry to the poster for just spilling out what is happening on their post this post is about them not me it is just your words have made me open the gates so to speak a little about what is happening as I get afraid sometimes to say

Thank you again for your reply and picking up I am struggling :-) x

jeelpie profile image
jeelpie in reply to

hey, that's why we are here to listen and support, I feel terrible that you are going through such a horrible time, it's a lonely place to be in I know and although we have family around us, it's difficult to be honest with them as mum's we are always rallying around and being the strong ones even although inside we are literally at breaking point! I totally understand how you feel the fear of dying is real! you have had such a difficult journey but you are still here and fighting which means you are a survivor! you have a purpose in this life I can't say what that is but you have been given another chance for a reason I firmly believe that and although I've only read your posts I can tell that you are a kind and warm person who's words have helped many, so believe in yourself your children need you, and so do people like me on this forum, please open up more, even if we can't help we can listen, sending you big hugs, please believe in yourself, I certainly do 🙏xxx

in reply tojeelpie

Thank You so much that is so kind of you and yes as Mums we feel we have to be strong They are adults now themselves eldest is 41 and then 36 but again as a Mum if they are in pain you feel it to :-(

Thank you again :-) x

Handel profile image
Handel in reply to

I'm so sorry for your loss and can feel your pain as a mum. Things will get better.

You've been such a help to so many people on this forum and we all thank you so much for your kind and wise words.

Thinking of you and sending virtual hugs and love. Jan xxxx

in reply toHandel

Hello :-)

I don't really think I have helped , I do not have the wonderful knowledge like others have on here which is why I like to come on and try and learn from them but thank you for saying I have helped :-)

And to think I only spoke to my surgeon 2 weeks ago and she said you must have a lovely Christmas after everything you have been through and I was there saying I will try , I think this will put a stop to it now

Thank You again , people have been so kind to me on here , very kind and understanding and that means so much to me to as been that little bit different with the severity of my anxiety we can be so afraid people will turn us away but so many have done the opposite including you :-) x

Handel profile image
Handel in reply to

You're always in our thoughts ❤️❤️❤️ xxxxxx

in reply toHandel

Thank You :-) x

Heather1957 profile image
Heather1957

Season's greetings.

I totally get what you mean when you say about people not understanding your condition.

I do know how much help and support I got here especially back in 2017 when I had my bypass, just to post about my daily struggles was a great help and a darn sight cheaper than going to see a therapist!!

Long may it continue.

Helly75 profile image
Helly75 in reply toHeather1957

Thanks Heather & same to you , it's so hard trying to get those I've known a lifetime to understand, I need to just get over it according to them ,you have to laugh though ,if it was that easy we would all have done it !

Heather1957 profile image
Heather1957 in reply toHelly75

I do hope my sister does not find this site!!When I had my bypass 1n 2017 my sister (older) was very much 'oh at least you know they've dealt with your problem so everything is fine now'!!

Well obviously not so fine as about 7 weeks ago I had 2 stents fitted and they had to drill before inserting them. I don't make a big deal of it as I am a very independent 64 year old but I'd like at least some sympathy that it is a worrying thing especially if I allow myself to dwell on the fact I will die alone in the house.

Anyway enough of the sadness (for now) let's enjoy what we have!

Helly75 profile image
Helly75 in reply toHeather1957

I always say it's all so easy for people to think like that when it's not happening to them ! There's no way they can understand it, I couldn't even begin to think what all that must have been like for you but again a bit of empathy on here can be a great help. 😊

Becksagogo profile image
Becksagogo

A Merry Christmas 🎅 to you too Helly.

Jermhigh profile image
Jermhigh

You too have a great Christmas and the new year and take care of yourself ❤️

Emeralds55 profile image
Emeralds55

I wish you a Merry Christmas too, xxx

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