Mycobacterium Chimaera?: Hi, anyone... - British Heart Fou...

British Heart Foundation

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Mycobacterium Chimaera?

kefalonia1 profile image
9 Replies

Hi, anyone else had a NHS letter warning them about this infection from the heart lung machine which can take up to five years to appear after surgery, l am worried. Take care, Sue.

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kefalonia1 profile image
kefalonia1
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9 Replies
Smikra profile image
Smikra

I received one over4 years ago. I had a quadruple bypass in March of 2016. My doctor said to keep the letter but not to worry. He said there was little chance of catching it. Ask your GP about it.

080311 profile image
080311

Hello, yes I had the same letter 4 years ago. Think we just have to look for any of the symptoms listed, and not worry. As Smikra says my Doctor said keep the letter but try not to worry.

Prada47 profile image
Prada47

Hello

I know Aberdeen R I sent out a bunch of letters to specific patients, but it wasn't sent to everyone who had, had bypass/valve surgery.

Hands Face Space and keep away from MPs to stay safe

Mikedabike profile image
Mikedabike

Thanks for your post. I had my AVR in a December 2919, then midway through 2020 I received a letter re: the above. I tried to dismiss it, hoping that it would not effect me. However every now and again I do find myself wondering what may happen in the future. I will be very interested to follow this thread, as the letter itself did seem rather dismissive. It is almost like they were admitting the fault was all there’s (the hospital I mean), but then simply tried to gloss over it. Good luck with your progress.

in reply to Mikedabike

As a time traveller you shouldn't need to worry 😋

Mikedabike profile image
Mikedabike in reply to

Aha, I’ve just spotted my obvious error. 😂 thank you Gaz chops. I’ll just readjust the settings on my tardis.

in reply to Mikedabike

I was picturing your bike with a Flux Capacitor and you peddling like crazy to get to 88mph 🚴🏼‍♀️🚴🏼‍♀️🚴🏼‍♀️🚴🏼‍♀️🚴🏼‍♀️

Infinity99 profile image
Infinity99

Hi, I had that letter 4 years ago and am now 6 years post AVR surgery. Thankfully no symptoms in that time so try not to worry. I did worry at the time, did lots of research but in the end there wasn’t much I could do. Just keep well and your immune system strong. Best wishes.

Shar28 profile image
Shar28

A warning about this was included in my husband’s pre-surgery pack for his AVR in January 2018. The hospital he went to has never had a case of it though.

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