Hi everyone just like to know how everyone manages with th virus I myself so far have been trying to stay safe masks gel yet when I go out I com bk feeling panicky in case I have got anything then feel slightly breathless which then mks me think if it is my heart so all in all it’s just anxiety but I do try to do other things to try and stop panic but until we know more about th virus I think a lot of us will continue to struggle if we go out worry and if stay in worry and honestly the thought if I had to go to hosp and not see any relatives I think would mk me worse so I pray for a end or someway into helping us with this virus take care keep safe everyone
Stress : Hi everyone just like to know... - British Heart Fou...
Stress
Evening Yasyass.
To try and reassure you I have been in an ambulance 3 times and been admitted to 3 different hospitals on 3 different occasions since August 2020. In my opinion,us hearties will still get the care we require. I can say I dont know what it was like before covid because I was only poorly in August so not sure what it was like before. Still scary though I agree with you. Am also sure you will get lots of different opinions from others here. In my opinion, everything we are being asked to do in response to covid is to reduce risk. That's all we can do. If everybody continues to reduce risk that's all we can ask. Anxiety and stress will go up, with out dodgy tickers we need to be kind to ourselves.
Hands.Face.Space
Take care
Jim x♥️
Hi Yasyass,
We are all in the same boat, as so to speak, and can only do what we can do in accordance with the recommendations.. By wearing masks, using gel and washing our hands we are helping reduce the risk of spreading the virus. It has almost become instinctive to socially distance from people that I meet when out on walks which I try to do most days. For me, and I am sure for many others, it is important to get out in the open air to relieve the stress of being within four walls. Unfortunately some people are not able to do this and I really feel for them, especially those in urban areas without gardens. In my case connecting with nature in whatever way I can, be it in the local park or countryside, has been an important part of dealing with stress. I have also found it helpful to get involved in those interests that engage me which has taken my mind off the situation.
I do sincerely hope that you find ways to lower your stress levels. It is not good to dwell on what is happening 24/7, so I would avoid watching too much news and listen to music instead. Talking to others on the phone can help, even though we may not be able to be with people physically. And for those of us with a faith, prayer is important, not only with regards to the virus, but with regards to one another.
Take care, keep safe and as I say to my friends, keep sane. ☺
Gerald
I just try not to think about it too much, we up north are practically in lock down again have been for weeks and it is looking like that for the foreseeable future, I am getting a lot of work done in my house it's keeping me busy at least, and I find it strange that I am allowed different workmen in but I can't visit my 91 year old mother, or any of my friends just stuck here myself, some of the rules are bizarre 🤔
Yep, rules are bizzare. Here in Wales lockdown was from 6pm last night. Was in local Sainsbury's during the afternoon doing weekly shop and they were making announcments about not selling non essential items. Didn't take much notice, but was later informed by a friend that they could sell food but not, for example, a kettle or toaster and some supermarkets had even been wrapping those shelves in clingfilm!! Madness or what😮😮
🤣It's ridiculous some of the rules, I am in the central belt only café's open until 6pm, but my friend is in Kinross they have restaurants open! but you can only have a glass of wine outside, not much good in Scotland, its freezing
I saw that and was horrified. It's utterly ridiculous. What idiot decided that a kettle isn't essential if yours broke? Carrying a saucepan of boiling water is dangerous. New sheets or towels are essentials.
As are duvets and winter clothing - also items the Welsh can't buy. Winter coming on and they can't buy winter bedding or a new coat for their fast-growing child, and they can't replace a knackered kettle?!
Absolute madness, no wonder people are going into supermarkets and ripping the plastic wrap off the banned items displays. I saw a photo of a man who went into his local supermarket in his pants, when confronted he asked 'Oh, are trousers essential now, then?'.
Family "bubbles" are allowed so I would include my mum in that as long as she lived at home. I still think care homes should be making one family member visits a priority. They are basically imprisoning their clients.
Hi
My Dad is in a care home and is now ‘end of life’ could be hours or a few days.
I’ve rang the manager she’s not answered me yet, then finally got a call saying she’s waiting for an answer from their regional manager, my phone call was at 8.30 this morning.
I’m just hoping I can say goodbye to him and hold his hand ( gloves on) and talk to him.
I’ve booked a slot to face time him from the home with someone doing it for him his end, he probably won’t know who I am or speak as he’s stopped eating and drinking now.
Just everything crossed he’s as comfortable as he can be.
I fully understand how careful care homes need to be but even full PPE through the window just to see him.
People have been through so much worse I know, difficult times for many. Take care everyone 🤗🤗
OH that is so dreadfully cruel for both you and him. I can see absolutely NO reason why you can't wear PPE and be with him at he end. I sat with my dad in hospital some years ago and even though he was almost comatose he definitely knew I was there. Fight the fight and insist. It's hardly going to cause him any harm is it?
Oh Fluffybee, I am so so sorry to read your post. My heart goes out to you, it is so sad that you are facing this without the inability to be at his side.
You will be in my prayers tonight and I send you a virtual hug and my hope that you can get to make contact with him.
Pauline x
Fluffybee, that's horrible! I hope you've been able to work something out with the home since you posted. My Internet has been intermittent owing to storm outages but I'm adding my voice to prayers for you and your Dad now I'm back online and reading what you're going through.
Still haven’t heard from the manager, I don’t know whether to think be patient, I know how busy they are, they are covid free there, but I rang 8ish yesterday morning, don’t want to bother them but I do have a face time appointment with him this afternoon so seems the next best thing, more difficult as he won’t be saying anything so just telling him things but nice I can update him just incase he can hear me, and the bonus of him actually seeing my face ( maybe not do good thinking about it 🥴) so may remember me otherwise if I went there I’d be covered up and I’ll just look like the last person in his room.
Vascular dementia is so cruel. for Xmas I would like a wand to make everyone better 😃
Never going to happen but a happy thought 🤗🤗
Hearing your voice will be a real comfort to him. (((HUGS)))
Thank you 🤗
I pray you can sort this. I am literally in tears for you thinking about not being able to be with my dad to comfort him in his final moments. If the staff can go in; people probably with teenage children at school who could carry it then why can't you? They can't tell me they are tested every day before work.
Hi qualipop
Just heart wrenching, just want to say family news and say goodbye 🤗🤗🤗 sorry you’re going through this terrible time as well 🤗🤗 x
I go out just once a week and do everything I need to; post office, local shop, maybe hairdresser. They are all in one place. Masked, sanitiser and when I come in I wash thoroughly and leave shoes out in the porch. . Anything that comes into the house gets disinfected; groceries, mail or parcels. I have one person comes into the house once a fortnight; my cleaner but she's off right now with, you guessed it- covid. I did worry she may have been infectious last time she came but we've gone over 3 weeks now and are ok. I kept well away from her and she wore mask and gloves and sanitised. I just reduced how often I go out but my husband goes every day for a paper which really annoys me when he could get one delivered. I've had several GP face to face appointments and 3 at hospital with another two to go. Must admit since the second spike, those two do concern me but I won't be cancelling. Otherwise I go out so rarely it doesn't really concern me at all. I think I'm much more at risk from flu or a bad cold. Covid is still only the 17th most common cause of hospital admission.
Both of us are long haulers having caught it in March. GPs have been disgusting in their neglect and medical gaslighting. There is no help for anyone who gets covid unless they are hospitalised. 60,000 of us have had the NHS slam its doors in our faces. Only one of the promised post covid clinics has materialised, in London.
Suggest:
World Health Organisation website rather than NHS for accurate information about symptoms.
For recovery information from those who have had the virus, a you tube channel using search terms Covid and RUN-DMC. And the support / patient research Slack group called The Body Politic (worldwide) which updates on an ongoing basis with articles and research as well as shared resources and information. And the group called Long Covid SOS currently informing WHO, and no guarantee of anything from WHO percolating into a NICE guideline, without which GPs across the UK have proven themselves callously unwilling to do any tests or checks to help people recover.
All in all a really strong message to do more than ever to isolate and stay safe.
Heart related symptoms caused by immediate symptoms and long haul covid experienced by 23yo and 60yo thus far have included unusual arythmias, tachycardia, bradycardia, chest pain, shortness of breath, clots and disintegration/explosions of blood vessels. Aware of thousands of others experiencing similar groups of symptoms.
GP did basic bloods, denied it was covid, told us to go shopping for immodium claiming it was a GI bug! Later denied further investigation claiming it was anxiety. Subsequent positive antibody test (paid for privately, reputable gov approved test) met with no further action from GP.
Covid research funded MRI shows older person to have heart enlargement, and the younger a seriously enlarged right side, believed ASD a valve issue and enlarged liver. NHS cardiologist will not see either for 9-18 months.
NHS is a fantasy, a legend from the past and not a present reality.
My 32 yr old son had it in early April. He lives alone. He was told by phone to isolate and his GP would phone him- never happened. He couldn't go out for food or drinks and didn't even have paracetamol in the house. I paid £18 for next day delivery of a box of paracetamol for him. He couldn't get an online food delivery at all and had nothing but tap water to drink. Luckily he had a watch to keep a check on his SATS. He got so breathless he could barely walk from his bedroom to the bathroom. He was a very fit runner and cyclist but after 3 weeks when he tried a short walk, he couldn't even get to the end of the street. That continued for around 2 months. We were in lockdown with travel banned so couldn't even take him food to leave on the doorstep. He had to live on takeaways. His GP never did contact him.
I'm so sorry he has been through this! Has he found the Slack group called Body Politic? It's the only place I've found where the whole reality is being researched and people are helping one another at many levels.
It really is a case of NHS has gone AWOL!
That’s sad hope he’s feeling well but I’m wondering why didn’t he order online my relative had the covid and the well being team phoned her every other day to see how she was doin and if needed anything I think there is a number apart from the local gp that deals with Covid patients
If his situation was like mine, he didn't order online because there was NO availability. I couldn't even sign up for a supermarket delivery, they were all not accepting new delivery customers. Added to which we were too ill to cope with computers. I lost 2 stones!
One night about 2 months into initial infection one website said they would offer new slots at midnight but they didn't. It was a horrific experience.
I finally managed to get a first supermarket slot in month 6 of my covid illness. I'm grateful I can now manage short periods of screen time and can think OK some of the time. I am aware that tens of thousands are dealing with massive amounts of brain fog and debilitating, fatigue that puts this out of the question.
Based on the experience of the thousands of people in the long hauler group I am in, GPs are mostly callous and cruel to people who manage their Covid symptoms at home. Your relative was especially and exceptionally fortunate!
Our GP was uncontactable for over a month during the time we were handling our first symptoms eg fainting from shortness of breath, SATS in 80s, the chills, HR anything from 35-170, new arrhythmias, relentless GI symptoms, electric shock sensations, shaking, feeling like being stung by swarms of bees, muscle weakness, crawling when we couldn't find strength to walk, confined to upstairs and neither able to help the other, inability to think clearly, headaches like being pierced by long nails, etc etc etc all the usual stuff of self managed 'mild - Covid.'
NHS111 message was to NOT contact the GP or 999 unless it was life and death.
We managed to get through the initial infection somehow. After which GPs refused to believe we had had covid without a positive test, but there were none made available nor privately purchasable. We were told it was 'anxiety' and to go away and not bother them. Wrong! Now I have am lucky enough to have a antibody test to confirm my reality. (The quality of the tests is appalling as the type I was able to access only gets an accurate diagnosis in 1 in 5 cases and fail to produce positive results for people who have been otherwise tested positive. At best it is like buying a lottery ticket. )
From the long covid group I'm in, which fortunately has several front liners including Paul Garner, I'm acutely aware of the extent of medical neglect, lack of availability of help be that tests, investigation, diagnoses of damage, and of the unexpected callous dismissal of thousands of people.
I'm angry, fatigued, and mind blown by the true nature of the society I find myself living in.
I'm praying right along with you, Yasyass, that this thing goes away sooner rather than later.
Meanwhile I tell myself I'm doing everything I can (hand-face-space) and I do that telling out loud whenever I feel a bout of anxiety coming on - usually at the front door leaving the house, and at the car park readying myself to get down and go inside.
So far it's working ok-ish, it doesn't help when I see photos and television news reports of people protesting wearing masks and taking other precautions, and the crowds of young people pub crawling 'one last time' before their area goes into more strict rules meant to prevent spread.
In all honesty, my best coping method is staying home with the telly off and the laptop closed, lol!