From One Day to the Next...

[MRSLADP]

Has anyone else experienced feeling really good on one day and really horrible the next? It's getting me down.

[sasquot1]

Hi yes I sometimes feel like that too. After speaking to a nurse at the BHF she said we need to allow ourselves to have bad days - and I kind of agree we are so used to trying to stay upbeat but it’s ok to have have down days as she said give yourself permission take each day as a fresh start. Think I’m going to try it and just give myself time

[Lezzers in reply to sasquot1]

That is so true.

[MRSLADP in reply to Lezzers]

Thank you for taking the time to respond. It helps to know that I'm not alone.

[Prada47]

Snap !!

[MRSLADP in reply to Prada47]

Thinking if you too!

[MRSLADP in reply to MRSLADP]

*of

[shwills]

Yes

Regularly I am so full of joy on days when I feel ok I try to do more on those days, I do accept it now that is the way it is and just hope for more good days

[MRSLADP]

Thank you for your reply. I'm sure I'll get there.

[Hidden]

I have days like that for many reasons as suffer with mental health plus other health problems, it can be a struggle just to carry on, but somehow I do

[MRSLADP]

I understand COMPLETELY and will be thinking of you.

[Sunnie2day]

Add my voice to the chorus. For me I think on my good days I try to do a little more than I should trying to catch up from the bad days and so the next day I'm a bit cream crackered as a result.

[MRSLADP in reply to Sunnie2day]

Me too Sunnie, hence the problem.

[Sunnie2day in reply to MRSLADP]

Learning how to pace myself is a constant struggle - when I feel good (and sometimes even great, wowsa!) I resent having to remind myself not to overexert when 'overexert' is simply vacuuming three rooms and steam mopping an 8x8ft kitchen and similar sized bathroom instead of just a quick light vacuum of one room and steam mopping kitchen or bathroom.

Learning how to pace myself is frankly irritating. I'll get there but having to remind myself to pace myself leads to the annoyance which becomes a stronger irritation which leads to the occasional 'what's the point?' thinking.

ETA: those three rooms? Small - we downsized to a much smaller home last year in large part to make housekeeping easier on me.

[MRSLADP]

Your story is really helping me. Thank you for sharing it.

[Calliope153 in reply to MRSLADP]

Add me to the list. I had a good day and then decided that the windows were filthy...... cue two days in bed getting over the exertion. But the consolation was I had a really clear view of the garden....

[Liece]

Sunnie2day i am the same. I get really frustrated when i feel ok to do things but know ill be shattered if i do. And on the down days i just know all i have to actually do is breathe - everything else can wait til tomorrow. Ive found my Mental health is difficult to balance after my cardiac arrest, Brugada diagnosis and procedure - especially when ive suffered anxiety and depression before. i try and tell myself its part of me processing whats happened.

[Platypus6]

I feel just the same, nearly 5 months trying to get my meds right! still not there yet now banging headache day and night from new meds, seeing cardiologist today for check up. Hopefully you will feel better soon xx

[MRSLADP in reply to Platypus6]

I will be thinking of you today. I hope it goes well.

[Hidden]

And me. I was told the bad days get fewer as time goes on

[MRSLADP in reply to Hidden]

Fingers crossed.

[Platypus6]

Thank you xx

[Pink2320]

Definitely. Sometimes the tears don't stop but have learnt not to bottle my feelings up and I think you will find a lot of us are the same. Hope you have a good day.

[dickielex]

That's the story of my life since my SCA in 2013. Good days, bad days. But hooray for the good days which I enjoy to the full. It's best to just accept this as normal and just give way to the swings and enjoy the roundabouts.

[MRSLADP]

Thank you. I will do my best and agree.

[Khonkaen]

I am 5 months in and get good and nad days, some in my head some physically, no pattern and it is depressing. Trying to fix the head part...keep trying..this is not what I expected, every other illness I have had has been a short waiting game and then improvements.

I am not busy and that is not a good thing.

[MRSLADP in reply to Khonkaen]

I am in the same boat and am doing everything I can to fix the head part. I hope to go back to work after my follow-up in Oct. But, I am a teacher so have to be careful.

[Harrison4]

So glad you asked this question on top of ha and stent thyroid became over active Re iodine and angioplasty

6 months since ha bad day today still in bed at 11.50am

Most days though I have started thinking just try and achieve a goal a day that I can look back on and feel I did that yesterday and yes it could be a 20 min walk

Climbing 5 flights of stairs in a day ( I live in an upside down house lol ) or washing cleaning a couple of windows but when you look back over your day or week those goals really help 😊👍

[MRSLADP in reply to Harrison4]

Well, isn't that a brilliant idea! I hope that you feel better as the day goes on.

[sandrann]

You can also add me to the list... now 2years since my bypass surgery and I still have the occasional low day...yes they are not as frequent as before...on my feeling like wonder woman.. haha..days I tend to overdo it and have learnt the hard way as I'm presently nursing a sprained knee.. lesson learned.. it's helped me with making a check list for the week and seeing if I can achieve one thing from the list every day, depending on how I'm feeling and the weather, if it's dry and sunny the outdoors beckons. Enjoy your good days and your low days as they're helping your body to heal.

Sending you hugs 🤗

[MRSLADP in reply to sandrann]

I cannot even tell you how 'not alone' I feel right now. Thank you for taking the time to reply and I hope your knee is healed soon!

[isobelhannah18]

Me too! Like a lot of the others if I feel o.k. I keep going even though I know full well I should be pacing myself, but it can be very frustrating. I try to go with the flow and remind myself I'm lucky because of the fantastic care from the cardiac staff after my H.A. last October. Although I hate taking all the meds. I'm grateful they're there for me to take.

[MRSLADP in reply to isobelhannah18]

I feel lucky too and agree about the meds.! Anything that keeps my heart in sinus rythmn is ok with me! Xx

[Juneybabes]

I can feel okay on a morning and think great today will be a good day ...then wham Angina attack and ectopic heart beats ...happened this afternoon, completely out of the blue after getting home from lunch out with my aunty and uncle .

[MRSLADP]

I am sorry to hear that. I sometimes feel wobbly after exertion too. Thinking of you.

[Sereza6]

All the time, very depressing

[Fenlotted]

All the time. One day I am telling my boss I am great and the next time he calls me I am a different person. I was furloughed the week of my op and now dreading going back to work because of the good day/bad day situation. Try not to over do things on the good days x