CHF: So this week i have been diagnosed... - British Heart Fou...

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CHF

Reece1977 profile image
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So this week i have been diagnosed with chf with an EF of 20%. I didnt have any symptoms and have just started a new job. The doctors look at me a little bewildered and it scares me. Im convinced im going to die. Im 41. Im in hospital awaiting a cardio mri. Im hoping the echocardiogram was wrong. Does it get better with medication?

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Reece1977 profile image
Reece1977
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Pommel profile image
Pommel

Hello reece, sorry to hear about your diagnosis, and that you're in hospital... I didn't realise I was so ill when I was diagnosed just over two years ago with a very low EF but I realise now what my symptoms are. They're just not typical. I did a similar thing with work too and said to the nurse who'd just done an echocardiogram that I was planning to go off to work with a 65 mile commute, I think she thought I was mad! In answer to your query, it does get better with the meds! After six months my EF increased from 10% to 25%,then at a year I was at 40%. The MRI will help find out what has caused the problem and the best way to treat it. It's early days yet and there's a lot of people on this site in a similar place. I didn't know about this site then and I think it helps to hear about improvements from others. Advice is not to research on Google, it does not give an accurate picture! Let us know how you get on x

chrisbattle profile image
chrisbattle

Hi Reece, sorry to hear about your troubles. I was diagnosed in August with Dilated Cardiomyopathy with and EF of 15%. Had a echo last week, and my EF is now 35%.

you can call the nurses at BHF or Cardiomyopathy.org and talk to them. I found them very reassuring and a mine of information.

Best wishes and stay positive!

Chris

stevejb1810 profile image
stevejb1810

A lot will depend on the why and wherefore behind your HF and low EF, but generally the drugs can and do help. An EF is 20% isn't great but the thing to be aware of is that a good EF would only be around 55% so its not that your EF has fallen 80%. It'll take time but there is definitely reason to be hopeful. Stay positive and take the meds

capbiker profile image
capbiker

Reece

What you haven't said is what is the course of your Heart Failure.

I am 39 years old, and was admitted to hospital with pnuemonia. To be told that I had heart failure too almost 3 years ago now. My EF was less then 15%.

Unfortunately the echocardiogram, some of the EF readings compared to an MRI can be slightly different. But not enough to give a false heart failure reading. If it is 20%.

My heart failure was coursed by a virus attacking my heart. Because of this, then doctor's managed to treat the virus. And put me onto a lot of medication. Now my EF is back to high 40%, and I am living more and less normal life.

Yes I do get tried easily still, if it's been a busy day. And I do find that if I am under the weather, it takes me a bit more longer then before to shake it. But I am more unless am back to normal.

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