Help & Advice please: Does anyone know... - British Heart Fou...

British Heart Foundation

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Help & Advice please

hearty1 profile image
8 Replies

Does anyone know if there are any organisations that could help please? I am finding it more difficult to cope with daily living. I was diagnosed with Coronary Heart Disease, Significant Heart Failure, Leaking Mitral Valve, Paroxysmal Atrial Fibrillation, Unstable Angina. I was prescribed preventative medication. I also have several Autoimmune conditions e g Rheumatoid Arthritis, Coeliac etc. Some days are worse than others. I really don't know what I need but was wondering if there was any help and advice out there as I seem to be struggling more on a daily basis. Many thanks.

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hearty1 profile image
hearty1
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8 Replies
S11m profile image
S11m

Hi…

The standard advice is "talk to a professional" …but, in your case: get your doc to refer you to a top allergy specialist and/or dietitian.

Sometimes several "conditions" have one root cause.

hearty1 profile image
hearty1 in reply toS11m

Thank you S11m for your reply. Oh so sometimes several 'conditions' can have one root cause. I certainly have several medical conditions. Advancing years don't seem to come alone for me! I'm now finding that no medical profession has ever asked if I'm managing or not. It seems if you don't mention anything no one bothers.

Riedenise profile image
Riedenise

Have you an Occupational therapist? They can help you, if you need help around the house etc. Give you aids and equipment. If not contact your Adult Social care team through your council. Most have a self referral online form you can fill in and request an assessment.

Your Gp can also refer you.

I too have Rheumatoid Arthritis and Osteoarthritis, Fibromyalgia, and have Mitral Valve regurgitation.

I hope this is of help to you. Take care. Rie x

hearty1 profile image
hearty1 in reply toRiedenise

Hello Riedenise , Thank you for your reply. No one has mentioned an Occupational therapist or any help at all. My GP has never asked me. I suppose he has lots of patients requiring help. So if I contact the Adult Social care team a Social Worker perhaps could help. Yes I have Rheumatoid, Osteoarthritis & Fibromyalgia as well as the autoimmune conditions and the heart conditions too. Yes your reply is of help to me, many thanks.

Riedenise profile image
Riedenise in reply tohearty1

Pleased I could be of help to you. Let me know how you get on. X Rie

hearty1 profile image
hearty1 in reply toRiedenise

Many thanks, much appreciated. Have a good weekend. X

golfgod profile image
golfgod

A up hearty you sound as fit as me.if you have Facebook go onto British hearties run by a guy called jeff Sykes loads of useful info on it.

hearty1 profile image
hearty1

Hello golfgod, thank you for replying. Yes ha ha I'm trying to be as fit as I can be, just like you! I do have Facebook but I never post on it. I only use it to have a look! I'm not really sure about it! Do I need to join to have a look at British Hearties or is it open to the public? Many thanks for your help. I'll just need to keep going!

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