Help please about microvascular angina

[Penguin60]

Hello, I have recently joined this community and would like to ask a question please?

I have had numerous episodes of problems with my heart which started after a very nasty dose of covid followed by a severe kidney infection but the angiogram did not reveal anything. However, the horrendous nuclear heart scan did reveal some damage to the outer wall of the heart and my GP tells me that I have also been diagnosed with microvascular angina.

I am now taking ranolazine which initially made an amazing difference eliminating most of the pain and breathlessness and I felt incredibly well for a couple of months. Then after another mild dose of covid just before Christmas I have gone down hill despite the ranolazine dose being increased.

10 days ago I collapsed with chest pain, going in and out of consciousness and breathlessness. As we were on holiday I was taken to the local hospital who were great and wrote to my GP saying I needed a very urgent appointment with my consultant.

The urgent appointment has come through for mid May and as normal follow up appointments with Cardio in this area are at least a year behind the due date that's good.

I am getting so much pain and I am totally exhausted despite maximum dose of ranolazine, isosorbide and aspirin plus frequent use of the GTN spray. I feel I need to find someone to help me who specialises in microvascular angina (and actually I am not really sure how this was diagnosed! ) and I have no idea where to start. Whenever any medic mentions microvascular angina they pull a face and just mumble that it used to be called Syndrome X but they know nothing about it!

Any help and advice on where I start to get help would be greatly appreciated.

[BeKind28-]

Hello

I hope you are feeling a bit better than when you wrote your post and so sorry I do not have the answers you are so needing

If you do keep feeling this way and it gets worse I would not hesitate attending A&E

You could always get advice from the BHF Nurses who are very good I will put you their number on x

Heart Helpline team on 0300 330 3311 Mon-Fri 9-5pm