Severe Triscuspid Regurgitation

[ParsJen]

Yesterday I had an Echo and I found out that I have severe Triscupid Regurgitation and Pericardial effusion, moderate 12 months ago.

I am a Pancreas transplant recipient of 21 years which has now failed and now back on Insulin. I have been having heart issues for the past 6 years resulting in having to have a Pacemaker for complete heart block in 2013 and also two stents in my LAD around the same time.

I have felt unwell for the past 18 months but i am always dismissed and even discharged from Cardiology twice. Just before Easter I had a nasty virus which led on to a flare up of my Rheumatoid Arthritis and subsequent swelling and odema of my legs and feet.

I mentioned this at my routine Transplant clinic, kidney function was fine so it wasn't that, I asked if I could have an Echo because I wanted an explanation as to why my feet and ankles were not getting any better.

My Echo was reviewed by a senior physiologist who said she was going to discuss my results with a Cardiologist the next day, my concern is that I am not currently seeing a Cardiologist, and will have to wait until I see my consultant in the Transplant clinic.

Slightly worried as I've recently started a new job and my employers do not know my complicated medical history. I have told them that I cant do the six flights of stairs which nearly literally killed me the other day!

[stevejb1810]

Try and keep in contact with your transplant consultant; try the department secretary to do that. Try also to see your GP. What you need both of them to do is to keep pressing the cardiologist for their review and opinion of the echo. If there are issues with the echo it should put you back on the cardiology list. Be proactive, as it sounds like you have been, make a nuisance of yourself and keep pushing.

Good luck