Mitral Valve Prolapse with moderate regurgitation

[Fireworks88]

Hi everyone, having been recently diagnosed with MVP and moderate regurgitation. I found out the level of regurgitation in December following a cardiac MRI. I had a 6 month follow up echo scan in June. Hadn’t heard anything back so decided to call my GP and the receptionist just told me there were no results just that I was under review and was due back for a scan in October. Just wondering if anyone has a had any similar experience? Thanks so much!

[marypw]

I've had a moderately leaky mitral valve for about 11 years. I'm supposed to get an echo every year, although that schedule often slips. An echocardiogram isn't an exact science - I did have one that that was nearer to severe, but ever since they been fine. I normally have to wait 6-8 weeks for the results.The only issue for me is that I've needed 3 surgeries in that time and the anaesthetist always wanted some input from a cardiologist, to make sure I'm fit for surgery.

I hope that reassures you somewhat.

[Fireworks88 in reply to marypw]

Thanks so much for your reply, it definitely helps. Sorry to hear you had 3 surgeries, hope all okay. I was just worrying a bit as the next follow up scan is in 4 months, and the last one I had was 6 months. I was thinking maybe the leak has got worse but they haven’t said anything and the next follow up scan is in October. Thanks for your reply 😊

[Silvertail]

I have moderate mitral regurgitation. They don't seem to worry about it until it's severe. In my case anyway.

[Fireworks88 in reply to Silvertail]

Thanks for the reply. How often do you have follow up echo scans?

[Silvertail in reply to Fireworks88]

Usually once a year, but sometimes more if I've been hospitalised for other heart issues.

[valeriep in reply to Silvertail]

Same here. My cardiologist said I might have moderate regurgitation for the rest of my life and never need intervention for it if it remains stable. I just have to have a scan every year to make sure there’s no deterioration.

[Hidden]

Hi, It seems a bit odd that you would have another Echo only four months after the last. From my experience they only do this if they suspect a problem, however, that doesn't appear to be the case.

You didn't by some chance have an Echo in October last year, prior to the MRI?

[Fireworks88]

Yeah that’s what I thought but if something has changed surely they should tell me?

I did have an echo last October, then was referred for the cardiac MRI in December.

[Hidden in reply to Fireworks88]

Hi, I had a feeling you might have had an Echo. I suspect the right hand doesn't know what the left hand is doing.

There's a good chance that as the GP doesn't have results from your June Echo, they haven't updated your records accordingly, and are still showing at a 12 month referral from October last year. To be honest, its rare that I get the GP involved with an Echo, and always deal directly with the hospital re-appointments. I'd try the hospital for the results and an indication when your next appt will be.

Take care.