I’m 33 years old and in a bit of a quandary. At 26 I had an episode of SVT completely out of the blue (240bpm), no prior heart issues or symptoms, and did the fun old adenosine jaunt in A&E. I was kept in for 8 days, put on sotalol, but my hr would still jump massively in the immediate aftermath (190+) even just talking normally. Echo was normal and no cause for my SVT has been found. The attack occurred within the UK but in the IOM, so when I came home I had to get referred to an nhs cardiologist. I had a couple of 48 hour halters, another echo, ETT, but the very first thing they did was switch me on to bisoprolol. Again, nothing ever found, and other than occasional minor bouts, I’ve only had one other major attack requiring intervention. For the first 3 or 4 years afterwards I suffered with palpitations a lot (had a 4 week halter without finding anything), occasional achy central chest pain, and I’m quite often physically aware of having ectopic beats, but over the last 12 months things have changed and I’m wondering if anyone else has had similar experiences.
Back in June I came over really dizzy, shaky and feeling generally very unwell. After a couple of bouts I used my sp02 monitor and discovered my hr was down around 40bpm when it was happening. My normal resting rate is around 75/80. Eventually ended up in A&E after a couple of days, and I had a very ‘funny’ turn whilst hooked up that had the alarms screaming but unfortunately staff had put me in a side room and were dealing with multiple patients in resus and majors. It’s happened once before, and I can only describe it as waves of the feeling you get when they give you adenosine. Afterwards I was freezing cold and shaking like a leaf and I felt exhausted in the way I do when I’ve had a major episode of SVT for a good few weeks afterwards. They kept me in for 6 days (not because of my heart though), stopped my bisoprolol for the duration and then sent me home on a reduced dose stating that where I’ve lost massive ammounts of weight my dose just needed titrating to compensate.
Since then I’ve been having bouts of symptomatic bradycardia with increasing frequency. They sent me home on 2.5mg, I halved it to 1.25, but that didn’t help. A month ago I stopped taking it completely, which actually resolved the bradycardia, but after 3 days I had the familiar impending sense of oncoming SVT with accompanying tachycardia so I took a dose and promptly ended up feeling like I was going to keel over again an hour later with a low hr. I’ve now been back to the GP and they’ve referred me back to cardiology for a halter and review, but basically told me to continue messing around with my meds in the meantime (as I have been for the last 3 weeks) to balance controlling the tachycardia, reducing the bradycardia and hopefully keep me out of A&E. But I’ve also become aware that when I am symptomatically bradycardic at rest, if I do so much as scratch my head my hr shoots up by at least 30bpm. If I walk 10ft across a room I hit 120-130bpm, sometimes higher, but when I stop it immediately drops back down to 40-50bpm. Even when feeling ok and my hr is fine, it’s still shooting up madly with even small movements. All my gp could tell me is ‘well, that’s not normal’. I’m getting palpitations at both ends of the scale, I can feel my heart in my chest when it’s slow, and pounding madly when I move, and I’m experiencing achey pain in my chest on a daily basis. Unmedicated I apparently have ‘the bp of a triathlete’ so Bisoprolol has always caused me to have a ridiculously low bp, to the point that when I was in hospital once they were giving me fluids most mornings before realising the meds were to blame and that it was probably actually normal for me, and it also means I suffer with OTH quite badly, but I’ve never experienced any other issues before. Healthwise, I have some neurological issues, including an ongoing query csf leak, but I generally consider myself fit and well.
Anyone have any thoughts, advice or experience of something similar? Any help would be very gratefully received whilst I wait for my cardiology appt.