What has been the most frustrating about ... - Beyond Psoriasis

Beyond Psoriasis

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What has been the most frustrating about living with psoriasis?

MaddieHU profile image
MaddieHUHealthUnlocked
9 Replies

Have your symptoms changed with age? What triggers your flare-ups?

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MaddieHU profile image
MaddieHU
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9 Replies
linda-5502 profile image
linda-5502

Stress is a big factor with me and the PsA. Also the weather.

beaton profile image
beaton

I think the only thing to change for me over the years, was arthritis. I have flares when stressed so try to keep worry to a minimum.

Menopause and allergies.

Seahorse02 profile image
Seahorse02

The frustration comes from finding no biologic that will put any of the several types of psoriasis I have, into remission. I need a redo on failed hand surgery but a surgeon won’t touch me until the psoriasis is in remission. The Palmoplantar Pustular psoriasis on my hands and feet is the most bothersome. It’s frustrating to have to wear socks and shoes while everyone else is in cute little sandals.

Yes it has changed in that it used to not itch at all, but now it itches so badly I have to take Benadryl. It’s changed in that now I have had to add an ENT to my list of specialists to have my ears cleaned near my eardrums (that skin packs).

Stress flares the psoriasis, cold wet weather flares the arthritis.

Nuttyshirlz profile image
Nuttyshirlz

I think is got to be now having arthritis psa X

kay67 profile image
kay67

When i had Psoriasis i found that stress, winter and Alcohol would cause i flare also certain materials such as wool for an example would make my skin sore.

Stress, alcohol and sugar can all worsen or exacerbate psoriasis. Alcohol is usually the fastest acting while stress seems to be capable of causing the strongest reaction and sugar can be additive to either one. All three are quite inflammatory!

Art

Bumley profile image
Bumley

Hard to say, as I have got older the episodes last longer. I am fortunate that I have minor areas wide spread which makes life difficult to apply creams.

jax553 profile image
jax553

The worst thing is people not wanting to touch you, for fear you will pass on something to them, The remarks are very hurtful, I am still struggling to this very day, with those remarks, To take the emphasis away from my palms, I had Tattoo's done to the backs of my hands, to try and stop the verbal abuse, I wore gloves, became Micheal Jackson for a while, I wore socks plastic bags and all sorts to try to get rid of this curse, I missed so many Family Gatherings, because my hands got so bad they had clawed, and still it is active, I want someone to tell me we have found a cure, But I know that is unreasonable, my Psoriasis has spread, it now goes to the front of my feet sides and underneath, I asked for them to be chopped off, I would only have my hands to worry about. But no-one listens and the worst thing is, Nobody Cares.

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