Beyond Psoriasis
1,747 members303 posts

If you haven't yet, introduce yourself to the community!

If you haven't yet, introduce yourself to the community!

Why not leave a short comment below and introduce yourselves. Give as much or as little information as you like.

If there is anything you would like other people's opinions or advice on, feel free to ask your own questions here: healthunlocked.com/write/be...

This is your community!

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Hello, my name is Sue and I live in Canada

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welcome to the community suzannedale! I hope you'll soon find your way around, please make yourself at home :)

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Hi Sue, I'm also Sue, from the US. So now we are:

Sue and Sue

and we are 2.

Yes, bad rhyme.

The point is I'm saying hello! Welcome to our community! I see you're a Suzanne and I'm a Susan, so we aren't exactly alike. I hope to see you around here again. 'Bye for now.

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Not a bad rhyme at 7am..lol

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Hi my name is michaela.

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Hi my name is Yvonne and I live in Edinburgh. I was recently diagnosed with psoriasis but probably have it for years also PsA and COPD so there isn't much they can give me

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My name is Ross from Scotland, really looking for any help and advice to deal with both my psoriasis and my PsA. I'm in my mid 30's and have very persistent psoriasis where thing only work for so long before stopping.

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i'm lisa and I live in southern California. i'm currently going to ucla for treatment and i'm less than impressed with most of the rheumatologists I have had in the past two years. I've had psoriasis for ten years at least and was told all along it was just eczema (palms of my hands only) even though I told doctors that my mom, her father, and all six of her siblings had psoriasis. I'm a firm believer that there's more to this disease than they even know currently, because I've had a colonoscopy and endoscopy and was told there's no gut inflammation yet my stomach hurt so bad in the beginning along with my lower back. I have sclerosis of the si joints, facet arthropathy, inflammation of the eye, elevated esr and crp, and tons of other acute phase protein elevations like d dimer and troponin, protein in my urine, I did have an elevated ana in the beginning but it's since been negative, I also have had an enlarged spleen, an enlarged heart at times, and thyroid and lung nodules. I had pleurisy as a twenty year old and lots of pneumonia. the fatigue can be overwhelming. what I have found to be sad is that so many doctors have wanted to say "you have osteoarthritis" but they can't account for all of the other issues while I've also had doctors say "you have psoriatic arthritis." I'm sick of going to doctors and being told "this is as good as it may get" or "well you look good" and one even said "be thankful you don't have cancer." some days cancer would be a welcome thing as bad as I've felt....at least you're going to get better or you're going to find peace.

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Do you suffer from bouts of swollen tongue? A hereditary link has been identified. I'm looking for someone with experience in all these additional conditions. I have chronic eye involvement and recently and acute colon involvement. I pray you don't have the tongue disorder as I do. . .

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no swolln tongue as of yet. and no colon involvement according to my doctors, but i have had my appendix out and had issues ever since....just psoriatic spondylitis and all the crazy stuff that goes with it.

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Hi my name is Mike I'm 51 and I've had psoriasis since my mid 20's. I'm currently on Stelara. I live in Chingford UK

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Hi to all,

My name is Francois, I'm from South Africa and have had psoriasis since 1989. It basically started on my scalp and progressively spread to others areas of my body. Over the years I have tried various treatments, had injections, used lotions and creams, tried ayurvedic, homeopathic, coal tar and numerous other treatments...all which have given some relief but never a lasting solution.

I have been on methotrexate for the past 14 months and although I still have some dry scaly patches which I tend to with Betnovate ointment and cream. I also take a supplement of glucosamine sulphate and chondroitin sulphate to guard against psoriatic arthritis (joint pain) as well as a supplement of magnesium & calcium to help against muscle soreness.

To top it all I also take a vitamin B complex to boost my liver while on methotrexate. So far blood tests have not indicated any damage to my liver but I do need to do a blood test every 3 months.

Like everyone else on this site as well as several other sites related to psoriasis in all it's various forms, I wish and pray that a cure would be found for this horrible disease. Compared to some of the folks I suppose my affliction is quite light but only as long as I stay on the methotrexate. Otherwise it would flare up all over and be really cumbersome, especially in my face (side of nose, eyebrows, scalp, behind and inside my ears).

Best regards to all. let's continue with uplifting and supporting each other and continually strive to not only find medicines to control psoriasis, but ultimately find a total cure.

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Hi, My name is Lorraine and I am from Albuquerque, New Mexico.

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Hi all. My name is Linda and I live in NJ. I am not sure what I have yet, all I know is that I don't want to play this game in the sandbox anymore. :-(

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Hi I am Peter and have been a life long sufferer of Psoriasis with plaques on my arms and legs. Any help would be appreciated!

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