If you haven't yet, introduce yourself to... - Beyond Psoriasis

Beyond Psoriasis

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If you haven't yet, introduce yourself to the community!

SimoneHU profile image
SimoneHUHealthUnlocked
20 Replies

Why not leave a short comment below and introduce yourselves. Give as much or as little information as you like.

If there is anything you would like other people's opinions or advice on, feel free to ask your own questions here: healthunlocked.com/write/be...

This is your community!

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SimoneHU
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20 Replies

Hello, my name is Sue and I live in Canada

SimoneHU profile image
SimoneHUHealthUnlocked in reply to

welcome to the community suzannedale! I hope you'll soon find your way around, please make yourself at home :)

BonnieSue profile image
BonnieSue in reply to

Hi Sue, I'm also Sue, from the US. So now we are:

Sue and Sue

and we are 2.

Yes, bad rhyme.

The point is I'm saying hello! Welcome to our community! I see you're a Suzanne and I'm a Susan, so we aren't exactly alike. I hope to see you around here again. 'Bye for now.

in reply toBonnieSue

Not a bad rhyme at 7am..lol

Mdowey profile image
Mdowey

Hi my name is michaela.

Hi my name is Yvonne and I live in Edinburgh. I was recently diagnosed with psoriasis but probably have it for years also PsA and COPD so there isn't much they can give me

rfm23379 profile image
rfm23379

My name is Ross from Scotland, really looking for any help and advice to deal with both my psoriasis and my PsA. I'm in my mid 30's and have very persistent psoriasis where thing only work for so long before stopping.

lotsoissues profile image
lotsoissues

i'm lisa and I live in southern California. i'm currently going to ucla for treatment and i'm less than impressed with most of the rheumatologists I have had in the past two years. I've had psoriasis for ten years at least and was told all along it was just eczema (palms of my hands only) even though I told doctors that my mom, her father, and all six of her siblings had psoriasis. I'm a firm believer that there's more to this disease than they even know currently, because I've had a colonoscopy and endoscopy and was told there's no gut inflammation yet my stomach hurt so bad in the beginning along with my lower back. I have sclerosis of the si joints, facet arthropathy, inflammation of the eye, elevated esr and crp, and tons of other acute phase protein elevations like d dimer and troponin, protein in my urine, I did have an elevated ana in the beginning but it's since been negative, I also have had an enlarged spleen, an enlarged heart at times, and thyroid and lung nodules. I had pleurisy as a twenty year old and lots of pneumonia. the fatigue can be overwhelming. what I have found to be sad is that so many doctors have wanted to say "you have osteoarthritis" but they can't account for all of the other issues while I've also had doctors say "you have psoriatic arthritis." I'm sick of going to doctors and being told "this is as good as it may get" or "well you look good" and one even said "be thankful you don't have cancer." some days cancer would be a welcome thing as bad as I've felt....at least you're going to get better or you're going to find peace.

LorraineChavez profile image
LorraineChavez in reply tolotsoissues

Do you suffer from bouts of swollen tongue? A hereditary link has been identified. I'm looking for someone with experience in all these additional conditions. I have chronic eye involvement and recently and acute colon involvement. I pray you don't have the tongue disorder as I do. . .

lotsoissues profile image
lotsoissues in reply toLorraineChavez

no swolln tongue as of yet. and no colon involvement according to my doctors, but i have had my appendix out and had issues ever since....just psoriatic spondylitis and all the crazy stuff that goes with it.

Hi my name is Mike I'm 51 and I've had psoriasis since my mid 20's. I'm currently on Stelara. I live in Chingford UK

FrenchJJ profile image
FrenchJJ

Hi to all,

My name is Francois, I'm from South Africa and have had psoriasis since 1989. It basically started on my scalp and progressively spread to others areas of my body. Over the years I have tried various treatments, had injections, used lotions and creams, tried ayurvedic, homeopathic, coal tar and numerous other treatments...all which have given some relief but never a lasting solution.

I have been on methotrexate for the past 14 months and although I still have some dry scaly patches which I tend to with Betnovate ointment and cream. I also take a supplement of glucosamine sulphate and chondroitin sulphate to guard against psoriatic arthritis (joint pain) as well as a supplement of magnesium & calcium to help against muscle soreness.

To top it all I also take a vitamin B complex to boost my liver while on methotrexate. So far blood tests have not indicated any damage to my liver but I do need to do a blood test every 3 months.

Like everyone else on this site as well as several other sites related to psoriasis in all it's various forms, I wish and pray that a cure would be found for this horrible disease. Compared to some of the folks I suppose my affliction is quite light but only as long as I stay on the methotrexate. Otherwise it would flare up all over and be really cumbersome, especially in my face (side of nose, eyebrows, scalp, behind and inside my ears).

Best regards to all. let's continue with uplifting and supporting each other and continually strive to not only find medicines to control psoriasis, but ultimately find a total cure.

LorraineChavez profile image
LorraineChavez

Hi, My name is Lorraine and I am from Albuquerque, New Mexico.

Lindachees99 profile image
Lindachees99

Hi all. My name is Linda and I live in NJ. I am not sure what I have yet, all I know is that I don't want to play this game in the sandbox anymore. :-(

Balgroggy profile image
Balgroggy

Hi I am Peter and have been a life long sufferer of Psoriasis with plaques on my arms and legs. Any help would be appreciated!

cabrio profile image
cabrio

Hello my name is Lesley and I live in Scotland

Methotrexateinme profile image
Methotrexateinme

My name is Jason. I was diagnosed with psoriatric arthritis in May at age 49. I have been having issues for 3 years (or more) with pain and stiffness in multiple joints, fatigue, carpal tunnel syndrome, etc. I finally self referred to Rheumatology after carpal tunnel release surgery on both hands with no relief, and a neurological work up. They wanted to repeat carpal tunnel release after the work up. After seeing a Rheumatologist, I obtained dramatic but improvement with medication. I take my last dose of prednisone tomorrow.

Self
dougal2 profile image
dougal2

Hello my name is Mark from u.k have suffered with psoriasis 30 years

LaneyL profile image
LaneyL

Hi! I am 45, I was diagnosed 2 years ago with Psoriatic Arthritis but I do not have Psoriasis. Also I have Osteoporosis in my spine and Osteopenia in my hips and knees. I have been reading a lot about the itchy scalp and I guess I never related that to my condition. Mostly a lot of pain and stiffness in every joint. I have tried Humira with no luck. Am now 9 months into Simponi Aria infusions with minimal relief.

PiggySue profile image
PiggySue

Hi, my name is Sarsu. I live in the UK, and was diagnosed with psoriatic arthritis by Dr Ellie Korendowych at Bath RUH.

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