Psoriasis and me.: Hi all,i've just joined... - Beyond Psoriasis

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Psoriasis and me.

jo-louise profile image
9 Replies

Hi all,i've just joined today,I've had psoriasis since I was 10 years old,I'm now 47,I inject myself with Methetrexate once a week,the doctors told me I would grow out of it,that's a joke37 years later and it is worse than ever,have other people had experienced this.x

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jo-louise profile image
jo-louise
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9 Replies

That must be so frustrating jo-louise. Is your psoriasis bad enough to consider biologic therapy do you think?

I've not had it as long as you and it's not constant, though when it first appeared many years ago I was told a whole lot of rubbish, mainly involving mis-diagnosis and crackpot theories. Seems to me that doctors have wised up to this condition somewhat in recent years .... is that your experience?

jo-louise profile image
jo-louise in reply to

Hi Postle2,over the years they have tried loads of different meds,you are right,when I was diagnosed many years ago,they just asked my Dad to come with me,they looked at his psoriasis and said I had it too,unbebievable really,they have muchly improved these days,I had 5 biopsies down and diagnosed me with Psoriasis Excematised,so a combination of 2.xxxx

nibbo profile image
nibbo

hi jo-louise i to inject weekly with Methetrexate been doing that for the last 2 years before that it was tablet form i said to the doctor that it was not working so he told me to stop it and see with in two weeks i could not move very well and my skin was the worst its ever been all so i was told i would grow out of it when i was young now 60 lol now i just grin and bear it you take care

jo-louise profile image
jo-louise in reply tonibbo

Hi Nibbo,know how you feel,how old to you have to be to grow out of it,ha ha,crazy really,I hope you can get some relief Nibbo,sending you loads of love.xxx

Joannamary profile image
Joannamary

I know just where you are coming from. I'm on Methertraxte tablet form. They up my dose and nothing is working I'm worse than ever. I'm finishing of coming off it I'm not coping with it. Do you itch and burns and sore ? Jo

jo-louise profile image
jo-louise in reply toJoannamary

Hi Joannamary,I do itch very badly and burn,i find using a sharp knife helps,I know I shouldn't butif I use a knife it's stop the itch for a while,look after yourself and take care.x

Jane-wood profile image
Jane-wood

I did. I have had it since I was 2/3. Along with arthritis (since 16 mths old). My mum was told I would grow our of both by 12 then by 15. Still have both all over body and now 39. I think it's easier to deal with them if you have never known life without them. Makes you a stronger person I am told! :-) On humira now but stopped working since having a baby last year so going onto stelara. Light therapy worked best but virtually lived at the hospital so can't really do that.

jo-louise profile image
jo-louise

Hi Jane,it does make you a stronger person,you're right,sometimes it is hard though,you think a med is working,then wham,it stops straight away,stay strong Jane,sending you loads of love.xxx

maria1973 profile image
maria1973

i too have had psoriasis for many years over twenty un fact ive never been prescribed methotrexate in all those years , i have the disease mainly on my sc scalp no amount of lotions and potions has alleviated it, any tips?

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