I recently been told by my gp and consultant that I have Behcets. I am currently suffering with genital ulcers that go right back to my bum area. I am really struggling to walk as the paint is agony I have been given the gel so I can urinate but I am in and out the bath etc...
I also have no it's and sores up my nose and my mouth is full of ulcers too.
All these things are in the last three months but I have been suffering with my bowl for the last 8 years having been in and out of hospital and tests as consultant thought I have cRohns disease or colitis but not enough evidence to prove. I don't sleep well at night my legs hurts and ache when still, along with all this I am really exhausted all the time to the point I could fall asleep doing literally anything. It really is taking its toll on my family and married life too. I struggle daily to care for our three children having to have family help each day especially now with the ulcers been worse than ever.
I am 28 but feel 30 plus older I am waiting to see a Rheumatlogist but my appointment isn't for another 7 weeks I have had no joy trying to get my appointment earlier. I am not sure what to do everyday is a struggle especially simple things plus the kids. Does anyone have any advice what I can do or where I can go in the meantime.