Behcet's Syndrome Society
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Red sores rather than white ulcers

Hello, I get mouth and gentile ulcers (I've not been diagnosed as I have a condition which symptoms over lap with neuro behcets but doesn't include sores/ulcers). Sometimes I get ones which look like e pictures I've seen of behcets, the white ulcers/sores but often instead of the white ulcers I get red sores. They are very painful and sensitive to anything spicy or toothpaste and the other ones hurt even washing with just water (and hurt anyway). I wondered if anyone gets just red sores?

1 Reply


Let’s have a look at both of your posts. Firstly, without meaning to sound patronising, the word gentile means something entirely different to the word genital. Genital is the area you are referring to when you ask about ulcers.

Right – you say you are getting ahead of yourself – yes you are. If you do have BD the symptoms and treatments are varied and there is no way of knowing what kind of treatment and management programme you would be on without a diagnosis. I don’t know what Ivig is so can’t comment on that other than to repeat that different people have different symptoms and different treatment so your friend’s comment may not be applicable to you.

If you have reason to think you may have BD, such as the person you see now suggesting that you might have it, then ask them to establish whether you do have it or not, or for a referral to someone who can diagnose it, or for a second opinion. There is absolutely no point in worrying about something that MIGHT be, particularly the treatment, when you don’t know what it will be. Rest assured that if you are diagnosed with BD, any treatment suggested will take into account all existing medications and conditions, such as your thin bones.

Neuro BD is extremely rare. If you have been told you may have this then you need to see a Specialist neurologist to confirm it.

Meanwhile, the person who is treating the condition you have now should be able to treat and advise you about ulcers and skin problems. There are lots of tips and advice available on the Society’s website such as treatment for ulcers, and they also have a helpline and lists of recommended specialists if you decide to ask for a referral or second opinion.

Please don’t worry, worrying today won’t solve anything tomorrow, but stress will almost certainly make things worse. Get a diagnosis, perhaps have your current condition reviewed and find out what will help with your current symptoms, such as changing toothpaste, avoiding certain foods and trying one of the many medications available for ulcers. Look forward to getting things under control and feeling better again.


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