Hair loss? : Hi everyone! I’m currently taking... - Behçet's UK

Behçet's UK

5,391 members4,392 posts

Hair loss?

Camp1997 profile image
8 Replies

Hi everyone! I’m currently taking 100mg of azathioprine daily and 50mg of colchicine. I have noticed since taking azathioprine I’ve had crazy amounts of hair loss. I used to have crazy thick hair and now it’s thin and brittle. When I put my hands through it I get a handful. Has anyone else had this happen to them?

Written by
Camp1997 profile image
Camp1997
To view profiles and participate in discussions please or .
Read more about...
8 Replies
Zuzu798 profile image
Zuzu798

Hi, I am so sorry to hear about your hair loss. I do suffer from hair loss too and have been having some success with folic acid and magnesium supplements.

Camp1997 profile image
Camp1997 in reply toZuzu798

Thank you!!! I will look into those

lesleyg profile image
lesleyg in reply toZuzu798

Could I ask what dose you are taking the folic acid and magnesium? Thanks Lesley

Zuzu798 profile image
Zuzu798 in reply tolesleyg

Hi Lesley I am using 2 x mg Folic acid every evening. During the time that I'm on methotrexate Dr ussually increases this dose to twice that amount. Magnesium chelate 500mg & Magnesuim 100mg it is a a basic one by GNC

lesleyg profile image
lesleyg in reply toZuzu798

Thanks ZuZu!

Adena72 profile image
Adena72

I was taking azathioprine 50mg daily and had no issues with hair loss. My doc increased the dosage to 100mg after about 4 months my hair began falling out by the handful. I know I need the medication but the hair loss is a bummer. I started taking Biotin 10,000mcg daily and have seen a slight decrease.

gillianTS profile image
gillianTS

Hi Camp1997

I would suggest if you have not already had a liver enzyme test carried out as part of your Azathioprine treatment then to get tested to rule out any toxicity issues with the colchicine, I had big issues with the drug and this too can cause hair loss. I realise the drug is being used by lots of people successfully but for me I am afraid it was not meant to be. It took 12 weeks for my livers GGT levels to get back in range.

Gillian

It’s interesting yes, I have severe hair loss with azathioprine and Remicade. I noticed really went through the roof when I started Remicade. I’ve used an essential oil that has been super helpful. I’ve noticed it’s cut my hair loss in 1/2. I use a shampoo called Nioxin, I buy from Costco. It has helped in cutting my hair loss. I know it is frustrating. There are so many frustrating things about this disease, i used to have long, beautiful eyelashes. Now I barely have any. That’s tough. I never thought I was vain. But sometimes things kind of hit you. Like wow. I used to run two miles a day. Now I use a walker and a wheelchair. For me, life changed dramatically, and sometimes it’s like that quote from Eleanor Roosevelt, women like teabags, don’t know how strong they are until they are in hot water. I hope your hair comes bag, try some of the suggestions, it did help, I used Rocky Mountain essential oils. Smells lovely too!

Not what you're looking for?

You may also like...

Extreme Hair fall/loss

Hello, I was recently diagnosed with Behcet and am currently taking plaquinil, colchicine &...
Pinkydxb profile image

Hair falling out

Hi all iv been on azathioprine two wks tomorrow ...im worrying my hair is falling out ..my mom said...
chrissie_lou profile image

Hair loss and bruising

Hi Having been diagnosed a while ago with Bechets does anybody suffer with severe pain bruising and...
B130859 profile image

Hair fall/Behcets!

I am having a lot of hair fall lately. I try not to wash my hair so often, because the day I wash...
Chaitali11 profile image

Sudden female facial hair

Hi, I have lots of painful symptoms which can be put down to BD and IBD. However recently I noticed...
Milliebell1 profile image

Moderation team

UKADMIN profile image
UKADMINPartner
TonyWT profile image
TonyWTPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.