Confused! : Hi everyone, Just wondering if... - Behçet's UK

Behçet's UK

5,391 members4,391 posts

Confused!

Camp1997 profile image
3 Replies

Hi everyone,

Just wondering if anyone has ever experienced very random infections - first starting with my ear piercing just the one side randomly became infected - the jewelry I’m wearing I’ve had for years and never any problems.. today I woke up and now my nose Piercing is infected... what is going on!?

I also of course have oral ulcers and my hand was swollen/developed the strangest and sorest rash... no

Clue where it came from.

I’m still fairly new and have been off all meds for a few months now. Am I flaring?

Written by
Camp1997 profile image
Camp1997
To view profiles and participate in discussions please or .
3 Replies
lesleyg profile image
lesleyg

Hi, it sounds like something isn’t right. At the very least I would go and see your GP. When you say you are off all meds is this something you have done or was it under medical supervision? For example if you go off prednisone suddenly it can cause a rebound effect and the disease will come back even stronger. No one likes to take meds but sometimes the alternative is worse. Hugs Lesley

Camp1997 profile image
Camp1997 in reply tolesleyg

Hi Lesley I was left just on colchicine and it wasn’t doing anything unfortunately, and I was getting very toxic side effects it was impossible to get to my rheumatologist so I weaned myself off of it. I just had an appointment with him last week and we are starting me on otezla now

lesleyg profile image
lesleyg in reply toCamp1997

Pleased to hear you finally got an appointment. Hope all goes well with the new treatment. Cheers Lesley

Not what you're looking for?

You may also like...

Confused...?

Hey guys, so after the past week or so I’ve been having a very rough journey. It all began with...
Camp1997 profile image

Dismayed and Confused

Note I posted this on Lupus UK as well, as I am looking for support from both sides of the coin....
Stm252 profile image

Physio and Behcet's

Hi everyone, I am wondering if anyone with bad joint inflammation and pain has tried...

Confused

I was told last year that I had behcets from my doctor at the hospital in Bristol , after being so...
samhawks profile image

any help for diet with behcets syndome ...

hi im 18 and i am under the behcets clinic at birmingham city hospital.....i have to of the symtons...
chrissie_lou profile image

Moderation team

UKADMIN profile image
UKADMINPartner
TonyWT profile image
TonyWTPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.