I'm new to the forum, this is my first post but have been looking through the forum for a few months now and found the advice and support given here really helpful.
I'm 28 and have recently been diagnosed with Behcet's after a pretty bad flare up, DVT in my thigh and uveitis in both eyes, but have had some of the chronic symptoms, ulcers especially, since teenage years. Before my DVT I was very active, and did a lot of combat sports and martial arts. I had to stop these for three months whilst on the apixaban blood thinners they gave me, plus the flare up had me pretty much knocked for ten for a lot of this time.
I have now stopped my blood thinners, the flare up seems under control (eyes are fine again), and I feel like my old self again. However my Rheumatologist has started me on a low dose of azathioprine and colchicine to hopefully prevent further flare ups.
I'm itching to get back into my old routine and hobbies but am also worried that either
a- over exerting myself physically will bring on another flare up
or b- It's just going to just keep making me sick now my immune system is supressed. I used do Brazilian Jiu Jitsu (hence the name) which involves a lot of close contact with lots of other people.
Anyway I was just wondering if anyone had any advice/ similar experiences of trying to continue any sort of physically exerting/group sports, with Behcet's and how it worked (or didn't) for them?
P.S. on a totally unrelated note, my Ophthalmologist is extremely pessimistic about my diagnosis. Despite the fact that my eyes have been inflammation free now for over a month she told me this week that my eyesight will almost certainly deteriorate and I will almost certainly need stronger drugs in the future. She said that Behcet's in the eyes is degenerative and very aggressive. Is this everyone's experience once they have Behcet's with Uveitis?