Frozen Shoulder : Has anyone had frozen shoulder... - Behçet's UK

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Frozen Shoulder

Ann1-74 profile image
21 Replies

Has anyone had frozen shoulder? I’ve been struggling for 1.5months. Got through to GP today & have been referred for Steroid Injection in my right shoulder. After call my left shoulder is now showing signs of pain too. Did the Injections work? Was it painful? I have the injections in my hips for Bursitis (bloody painful) How long before you felt no pain?

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Ann1-74 profile image
Ann1-74
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21 Replies
Jaxxi profile image
Jaxxi

I get frozen shoulders frequently after a flare. For years they would seize right up and take a year to get properly better. I have now found that as soon as I feel the pain after a flare, if I exercise the joint gently and frequently in all directions then the joints don't seize up. When the joints are OK I do a lot of yoga poses that strengthen the shoulders - I think being well muscled and limber keeps the circulation going and improves the chances of quick recovery if the joints get inflamed.

I have never had an injection as I don't get on with steroids.

Ann1-74 profile image
Ann1-74 in reply to Jaxxi

WoW. You so brave in solving your shoulder pain by yourself.

Yes, nights are the worst.

Trying all exercises atm.

Jaxxi profile image
Jaxxi in reply to Ann1-74

The key to the exercises is to keep going even if it doesn't seem to be working. It takes a long time to break down the adhesions once they are formed. You have to find the edge of your range of motion and GENTLY try and push it a bit further. Gentleness is particularly key in Behcets as if you push it too far the joint can get inflamed and undo the good work. Even if the steroid eases it, keep up the exercises then you will have strong shoulders when the steroid wears off. Do lots of work on the shoulder that is niggling and hopefully it won't seize up on you. You could try rubbing Magnesium Oil into it too. It is a concentrated version of Epsom Salts formulated to go straight on the skin. Very useful for sore joints as it relaxes muscles and nerves, as well as supplemented the whole body's magnesium levels.

Polzeath profile image
Polzeath

Hi

I have frozen shoulder right and left been going on for 9months now , I have had steroid injections not too painful but only worked on one side.

Night time terrible , have just had acupuncture which has eased the pain, more to follow and an ultra sound .

I have been told that it can take 2 years or more to heal quite soul destroying.im doing gentle exercise to try and keep it moving . Only plus point is that ulcers aren’t so severe at the moment and generally better after having gall bladder removed .

Wishing you well

Jaxxi profile image
Jaxxi in reply to Polzeath

Polzeath, my gall bladder needs to come out, and I am wondering if it is making me flare. I keep getting one after the other at the moment. Did the op go OK for you?

Polzeath profile image
Polzeath in reply to Jaxxi

Hi

Very poorly beforehand so really glad to have op had keyhole went well but just be warned it takes longer to recover than they say only now 3 months later can I say that my system is at a settled state.

Great for weight loss though

Good luck

sam0511 profile image
sam0511

Steroid injections worked for me - not painful just a strange sensation. Hope it works

Expectthebest profile image
Expectthebest

A few years ago both my shoulders froze. You need to do physical therapy exercises three times a day for several months. It took over a year for range of motion to be acceptable. Swimming helps if you have access to a pool. Medications rarely help

I had frozen shoulder. It’s an issue of time and patience and exercise. I also used Hemp cream at the end which seems to help. If you have diabetes it will be even worse. Focus on eliminating the inflammation the best you can. I didn’t have steroids either because it’s not good for diabetes. I just worked with PT. Just when you think it’s never going to get better, it’s gone.

Ann1-74 profile image
Ann1-74 in reply to Lovingdragonflies

I hope it fades away just as how quick it came on! Luckily I’m not diabetic. Will try rubbing HEMP oil there! Just hope it doesn’t come back.

My GP want me to go on to Injections without PT. I have been doing the resistance exercises & walking the fingers up & down the wall.

That’s interesting to not do the PT. It did help me significantly but I suppose each situation is different. Eric, my PT, worked the muscle as well as my exercises and I think that helped. I wasn’t seeing my internist for. it though, I was seeing an orthopedic doctor. She did say that the injections do work better if guided by an ultrasound if I eventually had to go that route. But that would be worst case scenario. PT would be first line of defense.

Ann1-74 profile image
Ann1-74 in reply to Lovingdragonflies

I’m doing the exercises at home, from watching my mother do them few years ago. Guess the Rheumy will tell me to do the PT prior to Inj. Let’s wait & see. At BCE atm. Will mention to Rheumy.

SCMW profile image
SCMW

Hi, apologies, I can’t help with your query but wanted to ask you about the bursitis? I’ve been diagnosed as having this in my hips, have you managed to get rid of it / how long has it lasted? I had hip issues, so giving way and pain which led to diagnosis of Behcets but that started in 2017 and it’s still active. Hydro was really helpful for strength but I can’t seem to shake it. So any info welcome. Thanks

Ann1-74 profile image
Ann1-74 in reply to SCMW

Hey, I’ve had Bursitis for 5+ yrs. The steroid Injections do work at first but become short wearing after a few injections. Everyone is different. I do think Hydrotherapy works great. Just expensive to have 3 x a week. I’ve also had the guided Injections into my groin. Which was a god send.

Do keep me posted on what you decide to do. Best of Luck xx

SCMW profile image
SCMW in reply to Ann1-74

Hi, thanks so much for your response. It can be longer term then. Were the injections painful or the bursitis, or both? The hydro I did for some time but only once a week. I need to get back to maintenance. Are they guided injections different or one and the same? Really is quite debilitating when it gets going. I hope your shoulder gets better. Thanks,

Ann1-74 profile image
Ann1-74 in reply to SCMW

Injections not painful just uncomfortable, they freeze the area prior to injecting.

Start hydro. If no change then do the injection therapy.

The guided had was a longer term solution. I was pain free for about a year. Guided one goes straight to the inflamed area as other injection goes to the whole of the thigh, hip etc.

Hope that helps.

SCMW profile image
SCMW in reply to Ann1-74

Back to the pool for me then, to be pain free sounds amazing so will see if I need the injections too then. I also have FMS but know little about frozen shoulders. I do hope you get some answers and relief. Thank you for your messages. Best wishes

Ann1-74 profile image
Ann1-74 in reply to SCMW

Thank you. Message me if you need more info. Xxx Ani.

Ann1-74 profile image
Ann1-74 in reply to SCMW

I was at Bham COE today & was told it’s not frozen shoulder but Fibromyalgia 🙄. I disagree. Will have to push for X-ray to get to bottom of this.

2106 profile image
2106

I had this a few years ago. I had acupuncture a few times and it sorted it out. Xx

Number4 profile image
Number4

This may sound crazy. There are videos in YouTube in which chiropractors fix a frozen shoulder in one visit. At least it’s interesting. Maybe you’ll find some relief.

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