Good day everyone, I have been very quietly observing this forum since my diagnosis of (HLA-B51) Behcet's around two and a half years ago at Addenbrookes Hospital Cambridge- and being particularly introverted i've taken more from reading other peoples experiences than sharing my own- for which I am very thankful
I do, now approaching 30 find myself in a situation where I feel very lost. The best way I was recently able to describe how I feel is 'spiritually broken'- I don't feel particularly depressed nor am I currently experiencing any dehabilitating symptoms (Infliximab seems to be doing the trick for now!).
The energy I use trying to manage my medication, flare ups and the general unreliability caused by the mental and physical attributes of the disease is dwindling, and I fear that my calm, logical and empathetic qualities will eventually fall victim to what seems to be a very much ongoing battle and instead feel myself becoming less patient, snappy and increasingly aware of negativity.
Coming to terms with everything is by no means easy, but what I am predominantly concerned about is how to nourish myself going forward. I have become generally inactive, and for whatever reason between flare ups I do not feel inspired or motivated enough to crack on with work or volunteering again- low self esteem and a lack of confidence are more than likely the culprits, but this is what I feel I need to change.
So after much research my question is this, can anybody recommend, point me towards or share a spiritual healing, holistic or wellness retreat in either the UK or Europe (wings somewhat clipped due to potential blood clotting on long distance flights!)
There is a lot out there, however I am looking for something that particularly compliments the Behcet's 'Journey' i.e Vasculitis/mental+physical wellbeing/chronic disease rehab (maybe not as extreme as my first idea of a traditional Amazonian ayahuasca ritual!). If only a doctor was able to prescribe nature, the ocean and sunshine?
Many thanks for your time.