Need a Specialist anywhere in Australia that specialises in Behcets 😫

[Gavino]

I read on here a year or so ago that there is a specialist in East Australia (I think) that has traveled to Turkey to learn more about Behcets.

Does anyone know the name of this specialist please?

[Lisl]

I don't know about that particular specialist. Where are you in Australia? There is a rheumatologist in Melbourne who certainly knows about Behcet's. Her name is Dr Mandana Nikpour and her private practice is at St Vincent's hospital in Fitzroy.

I hope this helps.

[Gavino in reply to Lisl]

Hi Lisl,

I'm in WA. Can't find one here.

[Lisl in reply to Gavino]

So sorry about my delayed response. Oh dear, I used to live in WA- couldn't get a proper diagnosis, much less treatment there. I eventually found a really good gastroenterologist (for GI Behcet's), but the others (forgive me) seemed imbecilic.

[razceiand]

This Dr may be the one your are looking for....Dr Talib Tahir 2/240 Sydney Road Coburg Vic.

"Coburg Rheumatology Service" ...believe he has lot of Behcet patients. I have been to see him twice this year.... Has written papers on subject and did his training in Turkey.

[Gavino in reply to razceiand]

Thank you so much razceland 😀👍

[Sweepsta101]

I see an immunologist at greenslopes private hospital in Brisbane. He isn't an expert in behcets but diagnosed me and treats me for the condition. Name is Dr Carl Kennedy.

I also have a great eye doctor. Dr Diane Conrad at the Wesley.

Hope that helps.

[lesleyg]

This is probably a bit late but I am seeing doctors at RPA hospital in Sydney. They are studying Behcet's Disease and have a few patients. I have a great neurologist (expensive) but he is well worth a trip across from Perth if you need that type of help. Message me if you would like any details. If you do see that guy in Melbourne I would love to know how you get on. By the way I live just past Wollongong.

[JHardiman in reply to lesleyg]

Hi Lesley, My daughter has been seeing a rheumatologist here in NZ but has not definitely diagnosed her as having Behçets. We are going to see an immunologist but if we still do not get a definitive diagnosis then we will go to Australia. What is the name of your doctor at RPA Hospital?

[KimmyA2000 in reply to lesleyg]

Hi Lesley...I am in Wollongong...would love to have the names of the RPA doctors please for my mum...Thanks. Kim.

[lesleyg in reply to KimmyA2000]

Hi Kim it depends a lot on how Behçet’s has manifested itself in your Mum - that’s the interesting thing - we are all affected differently. I ended up seeing Dr Roger Garcia immunologist, Dr Patricia Lowe Dermatologist and then several neurologists. The problem I found was that it’s a long way from Dapto and then sometimes it was a very quick visit (especially in Dermatology). In the end I paid privately and ended up seeing some doctors at Macquarie University Hospital (I was very lucky to have kept up my private health cover). I’m currently seeing a rheumatologist (from MUH) with a view to having a bone marrow transplant. Lesley (I’ve left a private message for you)