Hi I am a behcets sufferer all my life. Severe head pain, what can I take
Mrs: Hi I am a behcets sufferer all my life... - Behçet's UK
Mrs
Hi
I am so sorry; pain period is rough, but head pain is the worst. I have found Nucynta really helps me. Very new drug, almost no side effects and helps with my joint pain as well. Topiramate is another great daily headache med. have tried massage therapy with cupping?
I hope you find some relief.
ash
Thank you. Haven't heard of those drugs. Hospital ringing me tomorrow. Rang 111 eleven times could not get through, should have rang emergency, but your always unsure. Hope I get some help soon with these severe head pains. I am ok today, sometimes feel a fraud.
Ivan i am sonsprry it so hard to even get ahold of someone! That is aweful. How are you today? Did get a new medication?
May I ask why you feel like a fraud? Pain is pain, very valid. And it plain out sucks. But, we got keep fighting.
Hugs
Ash
Hi belle
Still suffering with head pain, may be coming from neck and going over, but interfering terribly with my daily life. Too much to explain. Called 111 eleven times no joy, this was last Saturday . I think should have gone to hospital. Ended up ringing the emergency number which my local hosp (rheumatology) gave me. Got back to me on the Sunday, listened to me said would speak to registrar and my consultant and ring me back. Have heard nothing. Not so bad at moment, using wheat bag warmed up, voltorol being rubbed into neck, but only temporary. Have had behcets since birth I am now a young 67. I feel a fraud at times as by time you get an appointment symptoms have gone or on there way out. Pezotafin have been mentioned in one of the behcets news letters by neurologist Dr Kidd . Maybe I will see about trying these. Thanks for your concern
How much water do you drink a day?
I have to drink about 3-4 liters
of water a day to avoid fatigue and headache. that's why I asked. do you think it's a headache or more migraines? where in your head is it hurting? Give as many details as possible please.