Hi everyone. For the last few years I've noticed that I suddenly get either very cold or very hot. I've mentioned it to doctors but they've not really taken any notice. It's got to the point where I have to put gloves on in the house and get a hot water bottle to get warm again. I don't get white fingers although for years they have hurt if they get very cold. I use glove warmers if they get cold when I'm out. The house is always warm and it seems to be a problem with my body temperature regulator. I'm now taking my temperature and it ranges from 34degrees to 36.1degrees as a norm. It does go to 36.5 sometimes. When my temperature is very low I feel very unwell and very tired and exhausted. It was particularly bad during operations on my feet and neck (done under local anaesthetic) and the surgeons put extra blankets and warmers on me. I went down with the flu, chest infection, and urine infections after the ops. Has anybody come across this before. I have a new lovely rheumatologist and I mentioned this to her. She tested my thyroid which is fine but my IGL is a bit low. I looked up mitrochondial and I tick a load of boxes but with BD we do that with everything. Any ideas please?
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