Like many Behcet's patients I had a lot of specialists before I had a diagnosis, and more afterwards. One of these was a cardiologist. For years I had had issues with dizziness, sweating, and blood pressure spikes. After I began having palpitations, I was put through a cardiac echo and fitted with a holter monitor. After 72-hours without an attack, I was defeated. During that time the doctor has noted a few spikes in my heart rate. One scary episode involved an early morning jump from 60 to 160. I was told I had sinus tachycardia and that it wasn't serious. Prior issues with beta blockers had been dangerous because my blood pressure, which is usually high, had somehow plummeted.
Anyhow, during my last hospitalization I kept setting off alarms. I was hospitalized because I was having hyper active reflexes but couldn't control my legs. I legitimately couldn't walk for three days until they pumped me full of IV steroids. The alarms were going off because my heart rate was going as low as 38 at night. Then it would jump into the 90s if I sat up, and into the 120-140 range if I stood. During the day this happened and still happens, going from 60/70 to 120/130. I've also become afraid to exercise because of it.
An embarrassing issue is using the bathroom at night. I get so dizzy and sweaty from getting up and going to the bathroom that I honestly end up slumping to the cold floor and passing out or laying there until my heart stops hammering away. I'm asking my neurologist what he thinks next week, but it is frustrating. I'm doing Cytoxan infusions right now, and they're working on the Behcet's slowly. I just don't know if this is POTS and if it's related to the Behcet's, and what it means treatment wise.