Difficulty breathing?: Hi everyone. It's 2am and... - Behçet's UK

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Difficulty breathing?

Dan_NY profile image
6 Replies

Hi everyone. It's 2am and another sleepless night. How nice. This morning I woke up to difficulty breathing. It felt as though my throat was closed up. It woke me up and took me maybe 10 seconds to breathe normal, long enough for me to just start panicking then it cleared. I had this happen several times the last few weeks. Never happened until month or so ago. Wondering if anyone had this happen or heard if it's behcets related? Thinking medicine related side effect more likely?

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Dan_NY profile image
Dan_NY
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6 Replies
billi profile image
billi

Hi I know what you mean. It's been happening to me for about 10 months now.....almost panic attack like, but definitely not as it can even happen in my sleep, plus I really am not stressed. Don't know what it could be and have never posted on it but you are not the first to post this so I thought I'd let you know you are not alone. Maybe we should chick with our GPs and see if we all get the same answers????

Smiles

Billi

nettie545 profile image
nettie545

I do know that BD can cause Pulmonary problems, so it's best to check with your GP or go to BD Specialist. Most Dr's don't know all this stuff anyway! Hope you find the answer. Feel better!

Shalom-yall profile image
Shalom-yall

I have had difficulty breathing for some time. I often have dreams of drowning or smothering and it wakes me and I realize I am having a hard time breathing. A lot of times I have difficulty taking a deep breath, as in panic attacks, but I don't have panic attacks and like Billii, I am not stressed. It just happens randomly and lasts for 3 days to a week sometimes.

When my Rheum. doc was diagnosing me for Behect's one of the questions she asked was "Do you have difficulty breathing, difficultly taking deep breaths?" I answered "yes", but was surprised at the question as I had never thought to associate it with Behcet's. So I would assume it can have to do with Behcet's since that was one of the questions for the diagnoses. I should have asked the Rheum doc to elaborate on the question, but forgot. I'll ask next time I go.

Dan_NY profile image
Dan_NY

Hmmmm. I guess I thought this was something with me. I have an appointment with the reumy in a few days and will be sure to mention, though I dont think she will know or really have a good answer.

runninggirl08 profile image
runninggirl08

Bd can affect our pulmonary system...please go get it checked out. Breathing issues r never to be fooled with. Hope u find relief

Jen2505 profile image
Jen2505

I have been on fairly high levels of steroids since Xmas and have problems when I try bad reduce the quantities, so increase them again. My doctor is aware of this.

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