Myfenax(Mycophenolate mode till. does anyone take these.

[sully14]

[tamirra]

Yes my daughter does ( CELLCEPT )

[sully14 in reply to tamirra]

Hi tamiera did you find your daughters symptom took sometime to get better .

[tamirra]

Hi, yes a few months as they had to higher her dose as the lower dose was just not strong enough, she still has the flares but nowhere near as bad as they were to need a hospital stay.

[rosshi]

hello I have been taking mycophenolate mopetil fur around 9 years it has suited/settled my Behçet's fairly well I don't get big flare ups any more, I was on 2000mg daily, but now that I attend the centre of excellence in Birmingham we have decided a good treatment plan is to try and lower the dose and wean off them altogether; if all goes well? I'm on 1000mg daily now...

It isn't very good to stay on immunosuppressants if your Behçet's can remain settled/stable without the need for them, can't comment any further though as we haven't got that far yet... (fingers crossed).

Is there any specific question you have about them? Please message me back if there is...

kind regards,

rosshi