Just wondering if any of you get a cold or gas... - Behçet's UK

Behçet's UK

5,392 members4,391 posts

Just wondering if any of you get a cold or gastro, on a scale of 1 to 10 how sick do you all get. AND are you on Azathioprine?

Michja profile image
5 Replies

Just wondering how concerned I should be about my daughter getting gastro whilst taking Azathioprine. In the past my daughter normally misses the winter bugs, but not this year. She has been on Azathioprine for 6 months and only had a few little colds which haven't worried her. I would call her rhumatologis if I became worried about Jaida but more just wanting to know what the BD group experience is.

Thanks heaps, Michelle xx

Written by
Michja profile image
Michja
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Wellington profile image
Wellington

Hi Michelle,

I was on Azathioprine for 8 months but have now been put on Methotrexate because it wasn't for me. I had never had chest infections luckily before I was put on Azathioprine but whilst on it I suffered constantly and was on antibiotics all the time. My doctor always said any sign of an infection should always be looked at as you are more prone to picking up things whilst on immune suppressants.

On a scale of how bad it gets for me personally, it has got quite bad and we are still trying to find the right treatment that is helpful. It seems to be normal for BD sufferers to take a while finding the right medication after trying many different ones. I feel very unwell with terrible headaches, ulcers everywhere, painful bones and muscles, terrible stiffness and bowel problems and have recently lost some use of my right leg which is being investigated by a Neurologist at the moment.

Hope this helps a bit, all the best, Jo x

Michja profile image
Michja

Thanks heaps Jo, I was interested in finding out if people get sicker or if their colds don't last as long, on steroids & Azathioprine. My daughter is also on IV Infliximab, and now I'm wondering if its that medication that has made her able to cope better with this bug. She still has had a flare but we have been able to stay out of hospital. Ya hooooooo. Xx

andreafm profile image
andreafm

Hi Michelle and Jaida

I have just been taken of of Azathioprine for the second time as I got very bad stomach problems with diarreah, spasms and vomiting. This is a well known side effect.

As the Azthioprine lowers the immune system it makes you more suseptable to infections.

I would check it out with your rheumatologist really

hope this helps

Andrea

GUEVARA profile image
GUEVARA

Hi there,

On immunusuppressants you are much more likely to get colds, virus' and infections. I had two spells of gastro in quick succession a few years ago - and it knocked me for six, requiring hospitalisation. Finding the right medication and balance can help. Mention your concerns to your specialist.

Take care, Tim

Michja profile image
Michja

Thanks Andera & Tim,

Jaida has appointments at Royal Children's tomorrow & also her 4th IV Infliximab. I will be happy to have her looked at. Packing a bag in case we have to stay in. The bug has kick started her body, ulcers, joints, headaches & generally lethargic. Good to have tomorrow arrive. All the best.

Love, Michelle xx

Not what you're looking for?

You may also like...

Wondering if any of you have had problems with warts on hands & sole of feet. I think it may be because of Azathioprine & Infliximab.

What did you do to help the pain. A wart on her thumb ended up badly infected 2 weeks ago & we...
Michja profile image

azathioprine

My 21 year old daughter has Behcets she is struggling at the mo and Doc wants to start her on...
praline107 profile image

Daughter had a fit this morning

Morning, my daughter rang me a few mins ago and told me that she had a fit while standing, her...
tamirra profile image

How do you know if your ulcers are related to BD?

OK, so i haven't been diagnosed with BD or anything, although I feel like i have an awful lot of...
nicz profile image

TNF

Hi, my daughter has been asked if you wants to try TNF as the other meds she has tried have not...
tamirra profile image

Moderation team

UKADMIN profile image
UKADMINPartner
TonyWT profile image
TonyWTPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.