Hi everyone! I'm really new to all of this so if I get it wrong, it's totally fine.
I'm currently being referred to Birmingham COE after being very sick for 3 years. I'm 17 now and am suffering severely. I've had mouth and genital ulcers since I was a child, and I've always had severe diarrhoea. However in the last 3 years it's gotten worse. I've lost 10 stone, both because of nausea and pain in my stomach, ive also had blistery sort of ulcers on my Legs and arms.. I've also had terrible joint pain to the point of my hands curling up and not being able to use them. Ive also lost two inches in height. I also get debilitating headaches. Since December last year, my eye sight has been getting worse, and now I'm partially blind and have been told I have 3 weeks left until I'm entirely blind. My doctors thought I had crohns, endometriosis, IBS.. They've passed me around everywhere and had given up on me... Until I met an entire stranger who mentioned behcets. My doctor thinks it fits and is very excited.. But I'm terrified I'm going to see the specialists at the Birmingham center and I'll be dismissed again and told its all in my head. I really just want to get diagnosed so I can have a name to the monster. Any tips or hints? I would be terribly grateful for any answers x thanks everyone xx