Consultant withdraw surgery: After 13 years... - Autism Support

Autism Support

3,615 members865 posts

Consultant withdraw surgery

Sharon201 profile image
2 Replies

After 13 years of my daughter being in leg pain we were finally given a diagnoses, we thought at last, okay required drastic surgery but now we know what it is and it is in writing. Went to 2nd appointment with head of department who said consultant was mistaken and that although my daughter could do with a operation to help with her lags in his opinion he did not feel it warranted it, my daughter has been housebound for 2 years and only 16 years old. Get a second opinion I here you say, well first of all you have to go back to GP and only if they feel it needs to be addressed would they consider sending her for second opinion I was also told by GP practice it does come down to funding. My daughters quality of life is down people who don't understand her or the autism I am pretty sure the head of department did not understand her autism and did not try, it was a very disappointing meeting he is sending her for Holistic approach, basically we got the impression he was saying it is all in her head and try some pain management. From when she started to walk we have had this problem I hardly think a 2 year old is going to have head issues about walking and continue to have painissues into her teenage years. so that is were we are at.

Written by
Sharon201 profile image
Sharon201
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Ms_Vonnie profile image
Ms_Vonnie

Hi Sharon201, don't give up, go and demand the 2nd opinion. I have been in your shoes for a different ailment and after just attending 1 hospital appointment went back to my GP and demanded a 2nd referral. It was a struggle, but I argued my case and he gave in as it was easier than arguing with me. The GP looked at my blood work and stated everything was normal but I felt far from normal. I hope this helps?

Sharon201 profile image
Sharon201 in reply to Ms_Vonnie

Thank you for sharing your experience, I will go to the GP as I know there is something wrong and we need to get it sorted, I can not let one person ruin my daughters life with his opinion, which is wrong. thanks.

Not what you're looking for?

You may also like...

Advice and support

Hi everyone, I'm after a little advice regarding my 4 year old daughter, we believe she may have...

What a waste!

My son is coming up to 28 years of age and has been suffering mental health difficulties all of his...

What are people's views on the connection between autism and the MMR vaccine?

I let my ittle boy have it now he has mild autism. I have a 10mth old little girl and I'm thinking...

My PDA husband

About 2 weeks ago I booked an appointment for my husband to see a doctor. I think he has PDA. He...

My story, my sons stories and trying to figure it all out.

I'm 37 yo. I'm a divorcee and a father to 3 amazing children. 2 boys and a daughter. I'm not sure...