Has anyone found exercises useful for Ataxia - Ataxia UK

Ataxia UK

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Has anyone found exercises useful for Ataxia

tedjohnson profile image
11 Replies
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tedjohnson profile image
tedjohnson
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11 Replies
jurgen profile image
jurgen

Of course, exercises are VERY useful

Regards

Dustycat14 profile image
Dustycat14

Exercise definately helps.my hubby goes to the gym weekly,g.p referral,carer go in free to assist.

jurgen profile image
jurgen

see my question:

physiotherapy .medical gymnastics .physical therapy .remedial gymnastics

Which of these do you have ?

Wyndham profile image
Wyndham

The exercises my physio has given me help a little with my back pain, but nothing seems to have helped with my Ataxia gait symptoms.

Litty profile image
Litty

Exercise certainly helps. I do some dancing and I have bored everyone before, so here is a link

ataxia-uk.healthunlocked.co...

My good friend Kati, who has ataxia, and writes an excellent blog, is a great believer in forced exercise

katilea.wordpress.com/2012/...

Hope this helps.

HarryB profile image
HarryBAdministrator

Hi tedjohnson

I think exercise and physiotherapy is essential for people with ataxia. It is not a curative therapy but more about maximising the function you have. It is the physiotherapists's role to give a program of exercises that are suitable for the individual and to ensure those exercises are being carried out properly and safely. It is the patient's role to perform those exercises regularly and, if advised by the physiotherapist, to carry them out daily.

My own experience has been positive. It is important that the exercise you do is right for you and that is where I found the advice of a physiotherapist invaluable. Since doing regular exercise as recommended by a physiotherapist I have gone from being a 'high falls risk' to a 'medium falls risk'. I think not because my ataxia has improved per se, but thinking about the way I move translating into the way I actually do move has improved. I have been formally discharged from physiotherapy for the moment but know I will be referred back if necessary.

I continue with the exercises that were recommended for me (everyone is different) which, I feel, continue to be helpful. I have tried to incorporate them into my daily routine and try to make them as less boring as possible, for example by doing them to music.

Harriet

tedjohnson profile image
tedjohnson in reply to HarryB

Many thanks Harriet Most helpful Anyone with Ataxia will get encouraged by the

various comments given here.

Did you see the Paul O'grady show on ITV last night A black poodle had lost the

use of it's legs and the vet had to put her down because she had Cerebella

trouble so I told my wife that I wasn't going to take our dog to the vets as I may not

be allowed home !!!!! Keep smiling

littlewheels profile image
littlewheels

Everybody i speak to (Dr's, physio's etc) have never heard of Ataxia, therefore i have never been refered to any exercise, but i started swimming after i was diagnosed 12 yrs ago and this year i started at my local Gym, it helps so much, not for the Ataxia as such, but just helps me feel better that i'm doing something and not just sitting in my wheelchair .

Willowpuss profile image
Willowpuss

Had mild ataxia for over 20 years,exercise daily,my philosophy,No pain no gain.It works very well for me.

wobblybee profile image
wobblybee

One reason we moved to our present house is because of the fabulous garden. We

looked forward to maintaining it ourselves, and also as a form of exercise. But, nowadays

I get very frustrated because the most basic tasks that I enjoyed, are almost beyond me,

because they involve either bending or reaching up! It's a good excuse on a sunny day!

jurgen profile image
jurgen

Hello "ted",

you forgot to tag your question.

Is it ok by you if our Admins, Harry, tagged it ?

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Tags are like helpful labels that allow you to find useful posts quickly. They appear at the bottom of questions and posts. When you write a post you should add relevant tags to your own posts and questions by typing them in the tag box. By clicking on a tag you will be able to find all the questions and posts that have the same tag, making browsing much easier.

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Regards

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