Does anyone out there have diagnosis of s.c.a 17?

[Dustycat14]

My husband recently been diagnosed with s.c.a 17.does any1else have it?if yes do you find yourself having probs with clearing throat all the time?

[jurgen]

Hello "Dustycat14",

I´m not sure which SCA I´m suffering from.

Actually, I don´t care much - since there is no remedy

anyway.

In hospital they diagnosed ".Autosomal Dominant Cerebellar Atrophy "

and strongly advised me to use a rollator.ö

Maybe it´s SCA 17 as I also have to clear my throat quite a lot.

Thank you for tagging your question.

Love

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[Dustycat14]

Hi Jurgen, my hubby uses rollator too,really helps,tried crutches,no enough support then I fall over them too!

[HarryB Administrator]

Hi Dustycart

I don't think the difficulties you're husband is experiencing with having to clear his throat all the time are specific to SCA 17-I think it is problem for other people who have a spinocerebellar ataxia (SCA), whatever the number. Has your husband mentioned this to his GP or neurologist and does he see a Speech and Language therapist?

Harriet

[Dustycat14]

Hi Harriet,Thanks for yr reply we've just been to the gp who thinks its acid reflux+changed meds amounts+awaiting a review with speech+language,think more related2that than acid reflux.