Burning hot feet at night. : I get burning hot... - Ataxia UK

Ataxia UK

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Burning hot feet at night.

carol31271 profile image
21 Replies

I get burning hot feet at night I have to get up a couple of times in a night. My neurologist has been useless I'm not sure if she misunderstood me or just dismissive. My G.P however always seems to be helpful, but ìs baffled. Anyone else has any experience or ideas let me know as I'd love to sleep better?

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carol31271
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21 Replies
wobblybee profile image
wobblybee

🤔 It’s possible…this could be linked to Peripheral Neuropathy.

My feet..can be icy cold…or very hot

nhs.uk/conditions/periphera...

carol31271 profile image
carol31271 in reply towobblybee

Yes sounds like mine icy cold in the day and when I get into bed, then hot I get up approximately every 3hours. Neurologist checked for feeling, but nothing further. I've been told by various doctors that it's my circulation, been putting my feet up even at night with no change. My G.P has done some research and says its hot feet syndrome tB12 ìs being checked and she is looking into any side effects that might be contributing .I'll let you know of the outcome.

wobblybee profile image
wobblybee in reply tocarol31271

🤔D’you recall a couple of years ago we had a heat wave.

My feet were so hot and unbearable ..I wrapped freezer packs in towels and put my feet on them.

carol31271 profile image
carol31271 in reply towobblybee

Yes I've done that, you can get icepack socks I think it's called cold therapy feet from the Internet.🙂

pinjem profile image
pinjem

Yes, but obviously I don't know if yours is the same! I assumed it was neuropathic pain and it does seem to be. I take medication for neuropathic pain.

carol31271 profile image
carol31271 in reply topinjem

It does seem to beà peripheral neuropathy, not sure if this is similar to neuropathic pain. I take medication for that too? NHS website takes you to that and my G.P found that too.

Cupcake12345 profile image
Cupcake12345

I too get burning feet but not so much that I get up at night or have asked about it, as I searched google and assumed it was neuropathy pain but I’m also at menopause age of could be that!

carol31271 profile image
carol31271 in reply toCupcake12345

Yes I'm going through the menopause I had hot feet!But putting them outside of the bed was enough.

SM25 profile image
SM25

I have struggled with burning hot feet that can keep me awake at night for several years now. When I mentioned it to my GP she was not interested at all, my neurologist immediately checked that I still had feeling in my feet (I do) but no other suggestions. My feet do not actually feel hot to the touch, I think it is more a sensation, almost tingling, if that makes sense. However I have found that running them under cold water before bed each night helps a lot - it enables me to get to sleep - although I usually have my feet sticking out from under the duvet by the morning 😅

carol31271 profile image
carol31271 in reply toSM25

Sounds familiar experience with the doctors. I'm not sure I can cope with several years of broken sleep. Hope they can sort it for both of us. 👍

7151 profile image
7151

What à misterie this antakia is i find symptômes Côme and go Something very scary happend to me thé other everning i feed feral cats on my Land my daughter has done her best to make it easier cause nothing Will stop me but i started walking backwards was OK thé next day

carol31271 profile image
carol31271 in reply to7151

Very mysterious and frustrating, strange you started walking backwards!

7151 profile image
7151 in reply tocarol31271

Very scarySorted it self out

carol31271 profile image
carol31271 in reply to7151

Good to hear!

penelope2 profile image
penelope2

Yes I used to have burning hot and itchy feet. Kept me awake at night, not a good thing with ataxia as we need all the sleep we can get . It's complicated so these are the points.What type of ataxia do you have? If autoimmune you will have inflammation.

Ataxia causes poor blood supply to extremities added to that lack of exercise so double whammy. Try getting your heart rate up for a short while every day.

Peripheral neuropathy is not always picked up by neurologists and can be indicated with gluten ataxia.

One autoimmune condition can often lead to another.

Ask your neurologist if OK to use revitive machine to increase circulation.

Check with a podiatrist for fungal infection. These can increase with poor circulation. GPs are not always able to pick up the signs just refer you and we all know how long this takes.

Seated marching exercises help increase circulation to feet. Check out MS exercises.

Soaking feet in coldish water with a little apple cider vinegar.

Good luck.

penelope2 profile image
penelope2

Yes I used to have burning hot and itchy feet. Kept me awake at night, not a good thing with ataxia as we need all the sleep we can get . It's complicated so these are the points.What type of ataxia do you have? If autoimmune you will have inflammation.

Ataxia causes poor blood supply to extremities added to that lack of exercise so double whammy. Try getting your heart rate up for a short while every day.

Peripheral neuropathy is not always picked up by neurologists and can be indicated with gluten ataxia.

One autoimmune condition can often lead to another.

Ask your neurologist if OK to use revitive machine to increase circulation.

Check with a podiatrist for fungal infection. These can increase with poor circulation. GPs are not always able to pick up the signs just refer you and we all know how long this takes.

Seated marching exercises help increase circulation to feet. Check out MS exercises.

Soaking feet in coldish water with a little apple cider vinegar.

Good luck.

carol31271 profile image
carol31271 in reply topenelope2

Thank you all good information, I've got fredrichs ataxia.

carol31271 profile image
carol31271 in reply topenelope2

couldn't help but notice your photo is that a cockerspaniel we've got one 5month old puppy a lovely breed! 🤩

penelope2 profile image
penelope2 in reply tocarol31271

She is 10 but still a pocket rocket.Enjoy your puppy 🐶

Jgwilk profile image
Jgwilk

yes, I had the exact same problem! Lower legs felt like they were burning from the inside out. Only before bed. It’s Neuropathy. I take 200 mg of gabapentin (neurontin) before bed. It helps SO much!Hope you get some relief !

carol31271 profile image
carol31271 in reply toJgwilk

I shall speak to my G.P quite a few others have said that gabapentin has helped. Been taking some for years originally for burning sensations in my shins,perhaps it needs increasing? I think there's been a case of death ears.🙂

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