How long being gluten-free?

[penelope2]

Hi all. Just wanted to share this.Firstly being gluten-free on a GFD whether through coeliac disease, gluten sensitivity or gluten ataxia is a life long way of eating. This is hard I know especially this time of year when others are eating whatever they want.

But travel with hope. I have been gluten-free for over 3 years now and still occasionally have small positive results like feelings improving in my legs.

This happened about 2 weeks ago and I wanted to be sure before posting.

So whether you have been diagnosed with gluten ataxia or like me self diagnosed then don't give up hope of small improvements in the Ataxia.

Best wishes for 2024 for everyone.

[wobblybee]

🙂 My daughter (no ataxia)… has had longterm problems with IBS. She’s had thorough investigations…and although not diagnosed Celiac, she does have Gluten Sensitivity.

🤔So..maybe there’s a link between IBS and Gluten.

I’m not positive for Gluten Ataxia..but I feel I am sensitive. I’m generally careful with food, but notice if I ‘overdo’ sugar and yeasty foods I’m inclined to feel sluggish. At one point it was suggested (not by a Neurologist) that I had symptoms linked to Candidiasis….which can cause Neurological problems.

Currently..testing has failed to find a link with a specific ataxia.

verywellhealth.com/fungal-c...

[pinjem]

That is brilliant news for you. These small changes make such a difference. It can take a long time. I now take immunosuppressants prescribed by the Sheffield Ataxia Unit as although I have Gluten Ataxia, I wasn't as 'good' as I had been, the Prof felt I needed a helping hand. This medication has really helped me, a brain fog just went (I thought I was fine) and other small but to me significant changes. Best wishes and how lovely for you! (I thoroughly recommend asking your GP to refer you to Sheffield- they are brilliant.)