Double Your Impact!

[Irmmy]

“It is wonderful to have these services to make this condition better! People should be open to accepting help. Keep moving or it is a use it or lose it situation.” – said Amanda about receiving peer-to-peer support and information from her local Support Group.

These groups offer a way for the ataxia community to connect with each other and build a supportive network of people who truly know what it is like to be affected by ataxia. By donating to this year’s Christmas Challenge you’ll support the five-year expansion of services provided to the ataxia community. The first year of this five-year expansion plan will focus on the Information, Helpline and Advocacy Services helping people like Amanda receive support, including peer-to-peer help.

This year’s Big Give Christmas Challenge is now open for donations. By donating to the Christmas Challenge through The Big Give's website before midday Tuesday, 5th December, your gifts will be doubled at no extra cost to you or Ataxia UK.

If you want to find out more about the vital role of the Christmas Challenge to the ataxia community, head over to our website at: ataxia.org.uk/tbg23/

So to double (or more if you add Gift Aid) your donation this festive season at no extra cost to you or Ataxia UK, head over to: donate.biggive.org/campaign...

#AtaxiaUK #ataxia #BigGive #BigGive2023 #DoubleYourImpact #GiftOfSupport #Services #Donate

[7151]

Yes lucky to live in France even though my dr knows nothing about Ataxia hé is so willing to learn ..i m not alone wonderful home helps physiothérapie in à good clinique nurses and most of all suportive family good luck everyone it could be much worse xx

[Jenandbeth]

I'm unclear what these services are that make this condition better. I, like most of us, would be very open to them, but so far Beth's condition has only deteriorated. Ataxia UK has provided great info but beyond that we feel left to get on with it. Even the annual neurology appointment is just an assessment of decline. Perhaps Beth's condition is too advanced or we live in the wrong region to access better.

[penelope2 in reply to Jenandbeth]

I am so sorry to hear that Beth is declining. Yes I agree with you and probably if they thought about it, many people with ataxia would. Of course there will be the odd person that feels they are very well looked after by the NHS, but I suspect they are in the minority.You would think that doctors, neurologists etc if they didn't know about ataxia they would research and learn. They soon would if were a member of their family.

It is shameful that you only speak at your annual assessment of your Beth's decline.

Personally I think this lack of care is UK wide. Where is the empathy and the hope!

Best wishes x.

[Jenandbeth in reply to penelope2]

Thanks for reaching back, it was kind and I appreciate it. Maybe my expectations are too high?!?

[penelope2 in reply to Jenandbeth]

I don't think your expectations are too high.